TRUE SELF CARE

Great self care post with tips that everyone will enjoy!

libfemblog

all photos by Rebecca Claire, libfemblog.com (Sony Xperia X, edited with VSCO) // all rights reserved


This morning I planned to get up bright and early, bash out a killer blog post and spend the afternoon chilling in the blazing sun with some good friends, good burgers and good ciders. But Saturdays never go to plan do they? Said friends are feeling under the weather and my head feels all fuzzy from days upon days of socialising.

I need to recharge.

I’ve been busy having fun the past month and it’s been fantastic but I just need a day in nobody’s company but my own. Not to mention, my bank account (and liver) could do with a 24 hour break from being hammered.

We all talk about having self-care time where we go full pamper on ourselves by burning candles, running a lush bath, smothering a face mask on and whatever else…

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Spinal Fusion surgery – post on Pain, Love, Hope blog

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This is a great description from Lisa of what a spinal fusion is, and she should know as this is her fifth!

“Four Months since Major Back Surgery – How am I doing?”

April 23rd was four months since I had my fifth spinal fusion. I have to have fusions due to having Degenerative Disc Disease that is constantly crawling up my spine and causing it to give me great amounts of pain. How am I doing and is there any changes since the surgery? Was this fifth…

 

via Four Months Since Major Back Surgery……..How Am I Doing Now? — Pain, Love, Hope

Photo from Buzzfeed

 

Kids’ Book Review from Raisie Bay – “The Goldfish Boy”

I found this lovely book review on “Raisie Bay My Blog, My Way” and I think that it follows on nicely from my last review covering autism.  This book is aimed at children aged 9 – 12 years old and included in the narrative is the serious anxiety related condition Obsessive Compulsive Disorder (OCD).

I bought this book because the theme called out to me. I thought it would be a good read for my 11 and 9 yr old daughters.
There are always those kids at school that behave a little differently and are hard to be friends with. Maybe they are bullies, or maybe they are just too unlike anyone else. Maybe they are just like the main characters in this book.

The Goldfish Boy is a story about Matthew, a twelve year old boy stuck in his bedroom because of debilitating OCD. But what is OCD and why does Matthew have it? ……

Please read the full review here: Review: The Goldfish Boy by Lisa Thompson

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Album Review: The Lonely Cry of Space & Time by Anna Coogan

I have just read this review for an artist that I have never heard of in Hifi Pig magazine.  Not quite in character for me – usually Duncan, Mr Intimate Audio, who would be doing this – but I thought I would have a listen based on the review.  Very, very unique sound – slightly reminiscent of Kate Bush…..anyway I have ordered it for Mr Intimate Audio, so great review James Fleming at Hifi Pig!!

The fight against ignorance is central to The Lonely Cry Of Space And Time. Combining the natural with the political, the scientific with the philosophical, and then soundtracking those themes with stirring, atmospheric electric guitar-strumming and haunting vocals is a deadly concoction.

Anna Coogan’s operatic Kate Bush-esque vocals spread the good word across The Lonely Cry Of Space And Time. A voice of reason in an era that conclusively proves that common sense is neither, Coogan’s words are a subversive and eloquent “fuck y’all.”

Underneath its sweet tones and stunning musicianship is a deep dissatisfaction with the status quo of today. The status quo appearing to be ignorance.

Both musical and cultural; here is a classically-trained opera singer armed to the teeth with an electric guitar, a record’s worth of great songs and sharp lyrical insight into the 21st century. If the top 40 sounded like this, we wouldn’t have Supreme Overlord Donald to worry about.”

Full article can be found here :Anna Coogan: The Lonely Cry of Space & Time

It has some great artwork too!!

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Monday Magic – Inspiring Blogs for You

Monday Magic

Good morning!

Another week, so time for some more great blog posts for you and this week includes a couple of ladies who are new to the Chronic Illness Blogger community.  I have spent this weekend catching up with blogs, finding some new ones through others posting on mine and visiting meet & greets.  I have also been introduced to Stumble Upon, (which my eldest tells me is really old fashioned!) – but apparently is a great way to generate interest and find different blogs – quite proud I actually managed to work out how to add the social media button which has been met with hilarity from the tech savvy generation in this house.

Anyway time to make that cuppa, put your feet up and enjoy some new posts from some of the amazing people over at Chronic Illness Bloggers!

http://www.colormelyme.net/why-lyme-disease-awareness-is-important/

http://www.notstandingstillsdisease.com/2015/09/11-health-care-mistakes-you-dont-know.html

http://themigrainediva.blogspot.co.uk/2017/04/conversations-how-to-speak-about.html

https://www.anchoredinhealth.com/home/2017/4/11/why-being-uncomfortable-is-ok

http://emilylofgren.com/resting-well-chronic-illness/

https://ohdessa.com/2017/04/17/a-week-in-the-life-aka-telling-the-stories-i-usually-dont/

http://caseythecollegeceliac.blogspot.co.uk/2017/03/respect-me-respect-chronic-disease.html

Pills, pills, and more pills!

http://atjax.net/im-still-a-good-mom/

http://www.travelbreatherepeat.com/trying-beach-vacation-ko-lanta/

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Stunning picture from Travel Breathe Repeat Blog

 

Claire x

Enabling rather than Disabling – A great post from I Told You I was Sick….and inspiration from a great little boy

I have just read a great piece on Jaime’s blog “I Told You I was Sick” and as someone who was given a walking stick – albeit a pink, sparkly stick – for her 40th birthday and now has a variety of aids including 2 wheelchairs about the house, this rings so many bells. Earlier in the week I watched a BBC programme called The World According to Kids and one delightful 9 year old boy was meeting his a wheelchair for the first time.  This little lad has a very rare form of dwarfism and whilst fiercely independent, he is now getting pains in his legs when walking any distance.  This prevents him from joining in with his family, taking part in activities with his friends and he described feeling sad that he had to be different.  This lovely boy is truly inspiring and actually had me in tears.

It was during this that my lovely girl, who is starting to experience more subluxations and pains herself, said that she really wished that everyone could see mobility aids such as wheelchairs as “enabling rather than disabling”.  Wise old head on young shoulders – that is my 14 year old!  She has seen first hand what a difference wheels have made for me.  So, please have a look at this great blog post:

Anxious about considering a mobility aid to help you get around? The thought of your disease or condition getting to a point which requires mobility help can be heartbreaking. And, especially if you are younger, the embarrassment or ridicule you anticipate for having to use a mobility aid might be hard to swallow.

Remember:

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Find the rest of the article at this link:   8 Signs a Mobility Aid Could Improve Your Life

Book Review “The Girl at the End of the Road”

Disclaimer: I was fortunate to be given a copy of this book by The Book Club on Facebook in exchange for a fair and honest review.

The Girl at the End of the Road by K A Hitchins

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Vincent has found himself in a situation that any self-respecting “City” boy would balk at.  He has lost his job, his rented home, possibly his high maintenance girlfriend and perhaps most humiliating of all, he is on his way home to his parents’ house in Suffolk.  Rural Suffolk.  At this point in his life, a decade or so after leaving school, he did not expect to find himself becoming reacquainted with his childhood bedroom or learning how to live with his loving, but in his eyes, staid middle aged parents.

But he is clear in his own mind that this is just a temporary glitch.  The downturn in the economy and his huge personal debts will not hold him back.  However adjusting to life in the rural village of Elmsford proves hard for Vincent, who assumes himself to be a city hotshot.  There is no immediate access to internet, the job offers that he expected to flood in are nowhere in sight and his social life is virtually non-existent – unless you count dog walks with his parents’ elderly dog.  A trip to the local library brings him face to face with a memory from the past in the shape of librarian Sarah Penny.  Having run into this old school friend once, he finds himself encountering her on dog walks and then actively seeking her out.

So begins what initially seems to be the most unlikely of friendships.  Sarah is the antithesis of friends who have featured in Vincent’s life as she is serious, quiet, slightly dowdy and happy to be in Suffolk.  She is certainly unlike the city girls who dress and make up to the nines, expecting champagne fuelled dates and expensive accessories.  Sarah, in her almost simplistic view of the world, makes Vincent accept some unpleasant truths about himself and his attitudes to life.

The story could be very clichéd, and at first Vincent is a pretty unlikeable character.  But it was with real interest that I watched his character evolve from spoilt young man to something altogether different.  Maybe there is an element of fairy tale to this, but as Vincent grows so does Sarah and the reader begins to have a glimpse into a simple world of an exceptional young lady.  I don’t want to give any spoilers, but I believe that there is enough already written about Sarah’s autism not to be giving anything away.  I am not autistic so do not pretend to have any inside knowledge about this complex condition.  But I do belong to a community of chronic illness sufferers, some of whom are on the autistic spectrum and I have recently read articles by author Laura James, who has autism and my own condition, Ehlers Danlos Syndrome.  I feel that Sarah’s autism, which included her extraordinary intelligence, has been handled sensitively and with relevance to real life.  For instance, her coping mechanisms at dealing with life following her mother’s death and her growing relationship with Vincent.

This book made me think, made me sad and in parts made me laugh out loud.  Perhaps most importantly it made me examine my own attitudes to those we consider to be different to ourselves and also those closest to us.  In my disability chronic illness community we call ourselves “spoonies”, in the book Sarah and her friends call themselves “The Specials” – a fantastic name.  Of course there is a moral to the story for Vincent regarding what in life really makes you happy…..and sometimes you are unable to see it for trying too hard.

For me a great read, with a long review, but 5 stars all the way!

Monday Magic- Inspiring Blogs for You

Hello!  I hope that everyone is enjoying a fantastic Easter  long weekend.  I am still finding new blogs to share with you from the Chronic Illness Bloggers group and this week we have a mixture from art to crafts to our loved ones.  So go make yourself a cuppa, pull up a seat and enjoy getting to know some more fantastic inspiring people,

Claire x

Monday Magic

  1.  http://thethyroiddamsel.com/autoimmune-diseases/losing-friends-and-alienating-people/
  2. https://chronicallycomposed.wordpress.com/2017/04/14/knitter-natter/
  3. https://illness-to-wellness.com/2017/04/15/what-to-say-when-someone-doesnt-know-what-to-say-in-response-to-your-suffering/
  4. http://superpooped.blogspot.co.uk/2017/04/spoonies-artist-problems.html?m=1
  5. http://mysurvivalcollective.com/thank-you-for-my-chronic-condition
  6. https://www.consciouscrafties.com/dealing-with-a-large-order/
  7. https://thegirlwiththefiveladsandfibro.blogspot.co.uk/
  8. http://mystripylife.blogspot.co.uk/2017/02/9-reasons-school-causes-stress-eds-cmt.html
  9. http://countingmyspoons.com/2017/04/when-your-partner-is-struggling-with-chronic-illness-and-pushing-you-away/
  10. http://fedupwithfatigue.com/april-14-2017-fibromyalgia-news/

 

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Beautiful picture from Ness’s post on The Girl with the Five Lads and Fibro

Can creativity be a realistic distraction in the face of chronic illness? “The Agony & The Ecstasy”

I have another link for you this week which examines how distraction, particularly through the arts, can help to manage symptoms of chronic illness.  This could of course be construed as a sweeping statement and I am certainly not saying that every chronic illness can be tamed by use of artistic means.  I am certain that those of us with chronic illnesses will readily say that our own conditions vary from day to day, some from hour to hour, and that relief and the methods to get that relief are variable.  In other words, conditions are individual and we certainly are.

I have written about British actress Cherylee Houston before.  She is in a long running British soap opera, is a chronic pain sufferer, wheelchair user and is the ambassador for Ehlers Danlos Support UK.  In this BBC Radio 4 programme she sets out to meet other chronic pain sufferers and to learn how the condition impacts upon their lives, their work and how they use creativity to help themselves.  Is pain always a negative experience or can it actually enhance creativity?

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Actress Cherylee Houston on the cobbles of Coronation Street with Lara Bloom, EDS.org

Many of us bloggers use writing as a creative way in which to help our own situation – this may be through connecting with others, supporting others in similar situations and reaching out for support ourselves – but more often than not actually writing about our experiences and feelings is a cathartic experience in itself.

 

 

Nearly everyone will be able to identify with some part of this programme and I hope that you find it inspiring.  Enjoy!

The Agony and The Ecstasy

Further reading : The Pain and Performance Artist Martin O’Brien – an essay

Photos from Google Image search

 

 

 

 

Monday Magic – Inspiring Blogs for You

Monday Magic

 

Good evening and apologies for the delay in today’s MONDAY MAGIC.  I have been otherwise engaged in Accident and Emergency following a Potsie faint yesterday afternoon – my Smart crutches held onto my arms as I fell leaving me with dislocated shoulders, elbow alongside a hip, knee and ankle.  One shoulder was not playing ball and by this morning my hand was swollen and resembling navy cottage cheese, my neck and pec muscles were in spasm and my arm was twitching like a paper fortune telling fish.

An xray confirmed what we already knew – and more as it was a particularly “odd” dislocation according to the consultant.  A dose of IV fentanyl & paracetamol, midazolam to relax the muscles and knock me out and 2 burly doctors did the trick.  We did smile though when told to go back to fracture clinic in 10 days – it will be out several times by then!  Feel like I’ve been hit by a truck tonight – I hurt so many bits in the grand collapse that Duncan is banning all walks now!!

This week’s blogs for you to get your teeth into are:

  1. http://www.ggmandy.com/2017/04/07/life-interruption/
  2. https://morespoons.com/time-change-physician-done-part/
  3. http://www.fibrofantastic.com/yogaforfibromyalgia/
  4. http://girlinhealing.com/carrot-cake-w-cream-cheese-frosting-grain-refined-sugar-free-dairy-free-option/
  5. http://asouthernceliac.com/chronic-coffee-chat-living-grace/
  6. https://medium.com/@KirstenSchultz/a-roundup-of-posts-against-autism-speaks-5dbf7f8cfcc6
  7. https://robertmgoldstein.com/2017/04/09/broken/
  8. http://edsjour.blogspot.co.uk/2017/04/health-update-blogging-from-my-hospital.html
  9. http://www.thisspooniespeaks.com/2017/04/my-experience-with-liberty-lotion.html
  10. http://itoldyouiwassick.info/2017/04/10/how-accessible-is-the-internet-for-people-with-disabilities-infographic/SONY DSC