Monday Magic – Inspiring Blogs for You!

It is the beginning of the week so that must mean time for some inspiring blog posts in a little Monday magic!  The last week has encompassed Valentine’s Day, the second half of half term and a trip to Berlin in our household.

I did manage to get to the RSC Twelfth Night at our local cinema, and whilst I couldn’t stand by the end, it really is a superb production. Adrian Edmondson – yes of Young Ones fame – steals the show for me with an outstanding performance of Malvolio.

twelfth-night-production-photos_-2017_2017_photo-by-manuel-harlan-_c_-rsc_234198.tmb-img-1824

Adrian Edmondson as Malvolio (source: Google Images)

When coerced by his colleagues into ridiculous costume, Malvolio gallivanted across the stage serenading the audience, making me think of a cross between a jester and an English Morris man!  So how did the rest of the family mark Valentine’s Day? We arrived home to pizza boxes and various teenage girls wrapped up in blankets in the lounge, and the student engineer did make a trip to London for an evening for two – I don’t believe he has a romantic bone in his body though!  As for the politics student, contact has been remarkably quiet this week….but he is probably even worse than his brother, so I would be very surprised if his girlfriend was given a card, let alone flowers!!

The eldest jetted off to Berlin for a weekend away with friends…..the friends were staying Photo from Clairein a posh(ish) hotel and our engineer was staying in a hostel next door.  Never one to waste money, his thought process went something like this “I’m not spending all that on a hotel, but if I stay next door I can sneak in with my mates and still use the facilities!”  We only knew he had arrived when his sister had a photo pop up on Snapchat…..I asked him to send some pics, thinking he  or his friends might feature in them, but this is what he sent! He is currently sending us angry emoji faces as he has been sitting on the tarmac for 2 hours in a plane that has a “problem”!  I believe they are now airborne, so hubby has been summoned to Heathrow……

 

I have selected a wide assortment of posts again this week – but I believe that there is something here for everyone.  The Big Money Saver post, whilst not specifically a chronic piece, is great for my spoonie friends out there and the post on PixieDusk “We Need To Talk about Cancer” is truly inspirational and I urge you all to read it.  When I found the wonderfully named Pass The Prosecco Please blog I was determined to find something there to share, purely because I love the name!!  The Mens’ Health Summit is really important – all you blokes out there should have a look, and if the men won’t, ladies please do! The posts are all fab, so sit back with a cuppa – or a Prosecco! – and steal some time to read relax and enjoy.

Pin for later

Monday Magic - Inspiring Blogs for You! (1)

http://www.thebigmoneysaver.com/6-fun-ways-to-save-money-when-hanging-with-friends/

https://pixiedusk.livejournal.com/468544.html

https://nothingbutpoetry.wordpress.com/2018/02/15/always-a-first-time/

https://askdrho.com/mens-wellness-summit/

http://christiehawkes.com/put-psychology-of-color-use/

http://www.balancedespitethechaos.com/blog/marvelous-massage

http://www.comfortbites.co.uk/2017/05/using-diet-and-lifestyle-to-ease.html

http://passtheproseccoplease.co.uk/im-not-good-at-resting-or-listening/

https://hypothyroidmom.com/im-fine-thanks/

http://healthy-life-box.com/no-wheat-no-sugar-no-dairy-delicious-avocado-coconut-sweet-potato-brownies/

Do you have a favourite?  Have you enjoyed these? If yes, please like, share and comment for your fellow bloggers.

Have a great week,

Claire x

Advertisements

Monday Magic – Inspiring Blogs for You! #Valentine’sDay

Love is in the air…..well it is Valentine’s Day this week anyway, and I hope that love is in the air for you, whether it be romantic or otherwise.  February 14th has never been a huge deal in our house – I don’t think Dad has ever sent Mum a card let alone flowers.  I have had flowers and cards over the years…and the occasional meal out – but I think after a particularly memorable night, crammed between 2 other couples in a Chinese restaurant and listening to their conversations as we couldn’t hear each other, the consensus was better to stay at home. OLYMPUS DIGITAL CAMERA We might have passed this on to our kids having just mentioned it to one son, who looked at me as if I was mad even mentioning doing something to mark the day.  Funny thing is we are going out this year – hubby is taking me to a live RSC streaming of Twelfth Night….might even get a McDonalds out of it if I play my cards right (are they gluten free I wonder?!).

Pin for later 

Monday Magic - Inspiring Blogs for You!Valentines (1)

So fingers crossed the current flare of POTS symptoms have passed by Wednesday otherwise he will be taking his daughter or mother in law!!  Talking of POTS – that is postural orthostatic tachycardia syndrome, not the cooking variety – I saw the online community working at its best over the weekend.  A member of a POTS group put up a very distressed post that signalled an intentional overdose of drugs was being taken – the members of the group went into overdrive to find out where this person lived in the world, making contact with personal friends to check on them, calling on Facebook to help via the reporting suicidal thoughts, and sending message after message of support and hope.  I am so pleased to report that a message was posted last night saying that a stranger had called an ambulance, and the POTSIE was safely in hospital being assessed and truly appreciating all the good wishes.  No trolls, no nasty comments – social media at its best!nope

Yours truly has been sitting watching the winter Olympics and gasping out loud.  The wind!! How are those snowboarders doing it?  I have found the ice dancing particularly inspiring – it took me back to being about 8 and reading the Noel Streatfield novel White Boots.  That book changed my life and I was going to be an ice skater!!  Dad took me to Streatham ice rink in south London, I put one foot on the ice expecting to glide away – and, you guessed it, my derriere met with a very cold, wet landing.  Bang went that dream.  But some of those Olympians are inspirational – the young Russian girls literally float over the ice with such ethereal beauty, and the Canadian pair are just something else.  A human body really shouldn’t be able to do that!! (My bendy  friends will recognise this sentence!).

From inspirational athletes to inspirational blog posts!  This week I have added in some posts for Valentine’s – they are alternating with the normal mix of fab posts from some old  pals and some new friends – some spoonies, others not!  So sit back and relax with some great Monday Magic blog posts!

https://shailajav.com/how-it-all-began-15-years-ago/

https://legallyblindbagged.wordpress.com/2018/02/09/night-to-shine-my-two-cents/

http://thedestinydive.com/2018/02/05/valentines-day-date-ideas-that-dont-include-a-restaurant/

https://ginlemonade.com/2018/02/05/anxiety-us/

https://thimbleandtwig.com/crafts/make-rose-petal-bath-bombs/

http://penny-pennystreasures.blogspot.co.uk/2018/02/no-matter-how-long-winter-spring-is.html

https://www.tasteofhome.com/recipes/sweetheart-coconut-cookies

https://theinvisiblef.com/2018/02/12/overcomers-louise-webb-healing-body-turning-illness-something-positive/

http://suzyhomemaker.co.uk/valentines-day-decor-2017/

http://www.abalancedbelly.co.uk/need-talk-fistulas/

http://www.todayifoundout.com/index.php/2015/02/bloody-sexy-drunk-origin-valentines-day/

https://melissavsfibromyalgia.com/2018/02/08/move-every-day-and-some-neck-and-back-pain-yoga-links/

https://www.elitedaily.com/p/i-cant-afford-a-valentines-day-gift-so-instead-im-planning-adorable-surprise-for-my-so-8138638

http://ladyjaney.co.uk/5-blogging-goals-2018-dares-wins/

http://www.myrecipes.com/extracrispy/valentines-day-blood-orange-cocktail

https://bettysib1998.wixsite.com/young-sick-invisible/single-post/2018/02/05/f

http://www.lifehack.org/524580/100-quotes-about-love

https://dinosaursdonkeysandms.com/2018/02/06/dizzycast-ep-3-a-disclosing-dizzy/

https://laurenconrad.com/blog/2018/02/friday-favorites-275/

http://mummyitsok.com/blog/what-is-postnatal-depression/

Really share the love this week and share these posts, comment and make a blogger’s day!

Have a lovely week,

Claire x

 

 

Post Comment Love

Monday Magic – Inspiring Blogs for You!

Good morning – just about at the time of writing – and welcome to February.  It is a freezing morning here and we have even had a few flakes of snow – yours truly plans to stay indoors for the day.  It must be cold as the lovely girl actually put on a coat when she went out to do her paper round this morning, and believe me this is unheard of!.  Then it took hubby nearly 10 minutes to defrost the car windscreen, which was just as well as the student engineer and his other half wanted a lift to the station, but they were both still in bed 10 minutes before hubby needed to leave to get the girl to school!!  I have never seen two young men get out of the house so fast!!

Never a dull moment in our house this week with umpteen trips to see different doctors.  Gastroscopy on Monday – “would you like sedation, Claire?” “err…do I look stupid? Of course I want sedation!!! I’m a nurse and I have seen these….” – orthopaedics on Tuesday,(will write a proper post), GP on Wednesday.  Dad was really disappointed that I couldn’t arrange anything for Thursday and Friday!!  But of course there was the Blue Moon to distract everyone…or not in our case as it was too cloudy to see….and for me it really didn’t matter as fatigue and brain fog as dense as those clouds took over.  Well that is my excuse and I’m sticking to it!pexels-photo-271897.jpeg

I wouldn’t want to leave out the middle child – particularly as we did receive contact from our politics student that wasn’t football related.  At 11pm Saturday night the ipad pinged and a message popped onto the screen – words to the effect “I have flu, I’ve thrown up everything I’ve eaten…what do I do?”.  Isn’t it amazing how these young, independent adults suddenly want their mummy & daddy for advice?  I mean what does he really think we are going to do from 300 miles away?  That makes me sound awful, and I’m not, honest – it just amused me. pexels-photo-416520.jpeg“Keep drinking….no, not alcohol, water!  Paracetamol….well ask a friend to go buy you some…..and don’t exceed the 24 hour limit!!”  We did speak to him yesterday and half his halls have flu, but I think he will survive.  I mean, I have had a shoulder hanging out again all weekend – what is he complaining about?? (This is tongue in cheek for those of you now wondering about my sense of humour – believe me, the son in question has the driest, darkest sense of humour around!)

untitled-document

In England the 1st February was #TimetoTalk Day – recognising and talking about mental health and illness.  I hope that opening up about this health issue is not confined to one day only, and I have found some great blog posts that focus on different aspects of mental health.  There is also a cosmetics review, some tips for all us bloggers to help our writing, and tips to juggle a busy life.  Two posts that really jumped out at me this week: one is published on a new blog, Chronic Pain India – please read the story of Namrata, A Hashi Warrior; the second is something close to my heart as an ex NHS nurse – the decision of The Ealing Mummy to leave the NHS.

Pin for later:

Monday Magic 5th Feb

 

So give yourself that break from whatever you are doing, grab a cuppa, sit down and explore some fantastic blog posts!

https://avionneslegacy.wordpress.com/2018/02/02/staying-afloat-while-riding-the-waves-of-depression/

https://myanxietymatters.wordpress.com/2018/02/05/the-amazing-power-of-storytelling/

https://chronicpainindia.com/2018/02/02/the-winning-horse-a-hashi-warrior/

https://phayteaspulse.wordpress.com/2018/01/19/simple-guide-to-having-a-daily-blog-routine/

https://www.raisiebay.com/2018/01/dont-look-forward-look-back.html

https://orianasnotes.com/2018/02/02/review-urban-decay-naked-illuminated-trio/

39977405952_111e1b996b_b

Image courtesy of Oriana’s Notes

https://chronicillnesstraumastudies.com/patient-medical-history-new-doctor-appointments/

http://honestmum.com/my-tips-on-juggling-work-and-family/

http://theealingmummy.com/the-day-i-was-interviewed-live-on-bbc-television/

http://butstillbreathing.com/hypocratic-oath-a-letter-to-all-the-doctors/

Please give some feedback and comment, like, share posts!

Have a great week,

Claire x

 

 

Monday Magic – Inspiring Blogs for You!

Monday Magic 29 JanGood morning on the last Monday of January!  Our week has passed in a flurry of parents’ evening, book club, Burn’s night celebrations and not forgetting our son’s better half being offered a great new job.  Funnily enough we haven’t had any news on the politics student other than a text about football scores – oh, the life of a first year student!

Parents’ evening was like a speed dating event…five minutes per teacher and when the bell rings get up and run!  Not sure the computer goblin automatically churning out slots on the online booking system had allowed for mass movement between the hall and the library, and he hadn’t allowed for a wheelie like me – although hubby just used the wheelchair to barge through other parents!  For Burn’s night we were greeted by a piper resplendent in kilt , sporan and full regalia.  How is it that one set of bagpipes can sound as loud as the  (what is the collective term for bagpipes – haggis? sporan? noise?) whole Edinburgh Tattoo?  It certainly had the desired effect of moving guests swiftly from the lobby to the dining area, but I think the ladies serving whisky must have been deaf and in need of a few drams by the time the meal was served.  Slightly disappointing this year was the lack of kilts….couldn’t persuade hubby into one!

Our book club read the new Emma Donoghue book The Wonder this month – review to come – and as usual we had lively debate from the actual book, to last month’s book again (The City and The City by China  ……..) which is being made into a TV series starring David Morrisey, to the current BBC TV series McMafia and Hard Sun.  Amongst the blog posts that I have for you this week is an online book club aimed specifically at those who would find it hard to get out of the house to attend one.  This could be spoonie friends, elderly, young/new mums….anyone who enjoys a good book.  Talking of which, I am taking part in a blog tour this week so will just drop a flier in for it – more info later this week.Review Tour

I am sitting here Nil By Mouth and have a hot date with a gastroscope this afternoon, so it does pain me somewhat to invite you to pick up your coffee…..but I will do just that and encourage you to kick off your shoes, sit down and enjoy some great posts from some lovely bloggers.  Maybe I will give the pilates a go whilst you down your caffeine….

https://survivinglifeshurdles.com/the-surviving-life-book-club/

Social-Media-4-540x540

courtesy of Surviving Life’s Hurdles blog

https://www.midlifesmarts.com/theres-new-ism-plump-ism-and-its-rife/

http://achysmile.com/index.php/2018/01/25/daughters-migraine-school/

https://www.nicolefrancesca.co.uk/homepage/2018/1/22/i-am-the-1-10-statistic

http://millysguide.com/6-reasons-pilates-good-mental-health/

https://www.chronicmom.com/2018/01/how-to-deal-with-people-who-dont-believe-youre-sick.html/

https://reclaiminghope.blog/2018/01/26/whats-your-favorite-01-26-18/

https://www.trulymadlysassy.com/2017/12/19/the-gift-of-loneliness/

https://ribbonrx.com/2018/01/29/two-frightening-side-effects/

https://emlinthorpe.com/2018/01/22/being-blanked-made-me-smile/

 

Please comment, like, and share the posts you love.

Have a lovely week,

Claire x

Monday Magic – Inspiring Blogs for You!

A week into the new year, the decorations are down, the Christmas tree is looking forlorn on the back lawn and the kids back to school.  Well in our case nearly…..the lovely girl returns tomorrow, the middle child returns to university next weekend and the student engineer returned today, just as the UK train strikes started up.

Pin for later:

Monday Magic - Inspiring Blogs for You!

Enter a caption

Our house has been a mad frenzy of coursework this last week – 2 projects for the final year of Engineering involving analysing the use of Boris bikes in London and Deep Learning (whatever that may be!); the lovely girl has been finishing her sketch books and final piece for her art, although any visitors would have thought she was decorating the lounge!!  The title of her works – “I, Me, Mine” and “Blood, Flesh, Bones” – so she has focused on our genetic Ehlers Danlos Syndrome.  I have spent some time modelling for her photographs and I wish I could report that they are super glam….but they are not!!!  Instead she wanted close ups of my body parts which looked the most veiny – charming.

SONY DSC

My Elbow!

Hubby managed the delayed visit to his parents, and whilst he was away I enjoyed reading and sharing a huge variety of blog posts.  This is just a small assortment varying from favourite books, to beauty products to a yummy recipe for dairy free ice cream.  Two that really stand out, and are poles apart, are Tania’s about her need for a Smartdrive for her wheelchair (I am slightly biased as we share the same condition) and The Bryntin Project’s plea to us all to realise the harm our birthday balloons are doing.

pexels-photo-221361.jpeg

So grab a cuppa and take a break whilst you dive into some fab blog reads.  Please comment, like and share!

http://www.whentaniatalks.com/fundraising-for-a-smartdrive/

https://croneconfidence.com/2018/01/06/first-world-blessings-2/

https://www.themerrymomma.com/2018/01/top-10-favorite-books-2017/

http://countingmyspoons.com/2018/01/ten-tips-combating-chronic-pain-winter/

http://chronicallyhopeful.com/first-outing-5-months/

http://littlemissmelanie.com/2018/01/07/favourite-beauty-products-of-2017/#utm_source=rss&utm_medium=rss&utm_campaign=favourite-beauty-products-of-2017

http://www.makeitbakeitfakeit.com/2018/01/the-most-amazing-dairy-free-mango-ice.html

http://www.corter.co/2018/01/the-way-ill-slay-in-2018.html

https://brainsandbodiesblog.com/2017/11/10/5-ways-to-have-a-productive-day-with-a-chronic-illness/

https://thebryntinproject.wordpress.com/2018/01/07/birthday-littering/

Have a great week,

Claire x

 

New Venture @ The Recipe Hunter – Weekly Share and Inspire, Meet and Greet

New Meet & Greet Tomorrow! See you there….

The Recipe Hunter

Blog Weekly Greet

Please come over and join us and participate in a New Venture over @ The Recipe Hunter and let’s have fun at the Weekly Share and Inspire, Meet and Greet! 

We will kick off this new venture next week,  Sunday, 7 January 2018, and I would like to welcome all old and new bloggers and trust that this will be a good opportunity for all of us to get to know each other better.

Watch this space and be ready for the first Weekly Share and Inspire, Meet and Greetnext week, Sunday, 7 January 2018. 

This is an open invitation to all bloggers from any niche,so please leave us a comment and tell us a little about yourself, and yes, we want you to leave us a link to promote and showcase your own blog.

You can use any link of your choice.  You may wish to…

View original post 372 more words

Monday Magic – Inspiring Christmas Blogs

Good evening!  I’m a bit late posting today as the dreaded task had to be done – Christmas shopping!  I have to be honest and say that this is the first year that I was dreading the trip that has become something of a tradition for Duncan and me over the last decade.  We get up and head off in time to have our breakfast in a cafe just off the market place, and then enjoy some empty shops before the crowds arrive.Christmas Blogs

But with each year early mornings become trickier and some days I can rival the youngsters for not being able to get out of bed.  Then there is the cold…and it was cold this morning!  Typically as the temperatures plummeted this week, so our central heating behaved in the same way as my body….it grumbled, then shrieked in protest, and finally refused to cooperate! So between dodgy pipework in the home and dodgy systems in my body, I have been snookered.  But I am pleased to announce that we did it…..even managed to find a very central blue badge parking spot and found that the cafe could cater for my increasing dietary restrictions.  The bulk of the shopping has been completed between today’s haul and my online exploits, and Duncan used the wheelchair as an effective battering ram as the crowds increased toward lunch time.

So now I am flaked out, dosed up to the eyeballs for my dodgy shoulder that constantly forgets the ball is supposed to live inside the socket, and have put together my favourite Christmas inspired posts of the week.  I have even managed to persuade the lovely girl to photograph our Christmas tree for you….Xmas tree

There is a blast from the past with eighties gifts (my generation – I had a Petite typewriter), a short story with a twist in the tale, suggestions for those of us with chronic health, crafts for the kids, food….food….and some more food!  If you don’t have time to check out all of the posts – please let me direct you to the final post (film) which will bring a smile to your face…hopefully without a Bah Humbug in sight!

  1. https://fancypaperblog.wordpress.com/2016/12/28/christmas-presents-of-the-eighties/
  2. http://www.mursway.com/2017/12/4-fashionable-christmas-films-you-need.html
  3. http://www.thebigmoneysaver.com/55-non-toy-christmas-gifts-kids/
  4. https://thatblogwherecheriemovestogermany.wordpress.com/2017/12/06/christmas-cookies-and-afternoon-drinking/
  5. https://bysarahwhiley.wordpress.com/2017/12/09/death-by-roses/
  6. https://blondieaka.wordpress.com/2017/12/15/christmas-recipes-christmas-dinner-the-starter/
  7. https://www.mostlyblogging.com/inspire-me-monday-linky-party-160/
  8. http://www.tomseamancoaching.com/holiday-throwdown-are-you-in/
  9. https://wheelescapades.com/2017/01/01/christmas-new-year-and-those-in-between/
  10. http://chronicmomlife.com/a-very-chronic-christmas-surviving-the-holidays/
  11. https://www.redtedart.com/diy-christmas-pop-up-card/
  12. https://humblefaithfamilywellness.com/christmas-break-stay-cations-ideas/
  13. http://www.raisiebay.com/2017/12/christmas-finding-spirit.html
  14. http://thethyroiddamsel.com/the-9th-day-of-blogmas/
  15. https://www.pinterest.co.uk/pin/448389706643263767/
  16. https://thepinterestedparent.com/2017/11/fork-painted-christmas-tree/
  17. http://invisiblyme.com/2017/12/18/the-christmas-tag-grinchy-or-merry/
  18. https://hughsviewsandnews.com/2017/12/18/help-me-raise-250-for-the-dogs-trust-by-leaving-me-a-link-to-your-blog
  19. http://mommadjane.com/cranberry-orange-sugar-scrub
  20. https://smorgasbordinvitation.wordpress.com/2017/12/18/smorgasbord-christmas-afternoon-video-happy-christmas-from-the-fur-family/

Scan0001Please comment, like posts and share far and wide in the spirit of the season!  Have a great week,

Merry Christmas,

Claire x

 

Monday Magic – Christmas Blogs for You!

We are now well and truly into the countdown for Christmas, PainPals, so it seems only right that Monday Magic for the next couple of weeks will become Christmas blog posts for you!  Here in the UK the old song “It’s beginning to look a lot like Christmas” is very true as a blanket of snow has enveloped great areas of the country.  The snow here south of London hasn’t settled, but other parts of the country have ground to a halt with schools and Christmas markets closing, ice rinks shutting and grid lock on the roads.  Those of you in other parts of the world accustomed to snow must look at us and laugh…..

Pin for later

Christmas Blogs 1

So it is bitterly cold – pretty awful for the nerve pain – the Christmas tree is bought and just about decorated and the outside lights are up…..but only half are working! Aghhh.  This weather is pretty grim for us spoonies and believe me that the cold and damp really do make a huge difference to our ability to do things.  Friends, please still ask us to parties and carol concerts, but don’t be too upset if we have to bail at the last minute. I for one will always get to a party if I can!!  At the moment though the cold, nerve pain and spinal cord stimulator are doing a manic battle in my back and leg!

On a family note, for those who sent such lovely messages when I wrote about my lovely girl and her friends’ exams – she did really well and is so pleased.  So fingers crossed for next summer.  Meanwhile the art coursework takes priority….

IMG_3617

Sketchbook street scene by Lucy

I have really enjoyed reading some fantastic Christmas posts over the last few weeks and have pinned many.  This is a selection of just a few – they vary from traditional recipes(check out the slow cooker hot chocolate – gorgeous), a Christmas book review, gift ideas for the family and for those with chronic health, ways to keep stress at bay and some classic Christmas movies. But to start off I’d like to direct you, with some mulled wine or cider in hand, to a Christmas limerick….enjoy!

 

 

https://www.judyedwinamartin.com/christmas-limericks-three-not-wise-men/

https://orianasnotes.com/2017/12/07/christmas-decor-inspiration/

38003335965_db9ae8cd7b_c

Pictures from Oriana’s Notes website

https://losingtheplotweb.wordpress.com/2017/12/09/gingerbread-house/

https://www.abbeymaelife.com/blog/holidaystressmanagement

https://veroniiiica.com/2017/12/04/visiting-holiday-lights-with-photosensitivity/

https://thekeeledeal.com/exhausted-parents-gift-guide/?utm_medium=social&utm_source=pinterest&utm_campaign=tailwind_tribes&utm_content=tribes

https://www.solosophie.com/christmas-things-to-do-in-london/

http://edsjour.blogspot.co.uk/2017/11/why-christmas-this-year-will-be.html?spref=pi

https://schoolrunshop.com/fight-festive-fatigue/

https://backpainbloguk.com/2017/11/24/christmas-and-acute-and-chronic-pain-sufferers/

https://www.thelatinanextdoor.com/2016/11/04/ultimate-christmas-movie-list/

https://www.playpennies.com/features/slow-cooker-hot-chocolate-167766

32561-2fd5e972a8e4ebbe2e751f4503e90a34

Picture from Play Pennies website

http://leelslovesbooks.com/mistletoe-moonglow/

https://www.the11best.com/christmas-nail-art-ideas/#_a5y_p=4645297

https://emilylofgren.com/christmas-gift-ideas-chronic-illness/

As always friends and bloggers – please share the goodwill by liking, commenting and sharing these posts.

Have a great, warm week!

Claire x

Monday Magic – Inspiring Blogs for You! #Christmas #December

Well here we are, friends, in December and I cannot believe just how the year has flown by.  There are plenty of fantastic Blogmas posts that have begun to appear in the blogosphere, but I am resisting the urge to share just Christmas posts….yet!

We had our first Christmas night out last week with our local book club.  My hubby Duncan and I meet with like minded friends once a month in the local pub and have a very informal, often funny, chat about the book that we have all read the previous month…..or not in the case of Duncan!  Actually that’s probably not fair – sometimes other people haven’t read the book either!!  No, seriously, he has read a couple in the past.  Anyway this month – with a meal out being on the menu – we found ourselves accompanied by the eldest and yougest kids…..the middle one probably would have come too if he had not been at uni.  I was worried that book club might think they were being overtaken by the Bendy family, but they were happy for the engineer and lovely girl to join us – particularly when the student engineer found a voucher for 30% off.  He even chose the book for December – which I have purchased on audible in the hope that hubby might get to the end of it if he can listen whilst walking the dogs.

 

I was incredulous when in the space of 10 days I received two hospital appointment cancellation letters – one rheumatology and one cardiology.  But then I had a CT scan appointment for my shoulder out of the blue scheduled the week before Christmas, NHS at 7.20pm.  I had no idea appointments were ever scheduled this late!!  Today I had a phone call for an orthopaedic appointment – so where I have lost two, I have gained another two…..don’t worry that they are different speciality.

Currently the student engineer is pacing the room ahead of a telephone interview/coding test this afternoon – and another with facebook later this week.  The prospect of interviews and work in the real world are suddenly very real – so how does mum calm down a very nervous adult son, who seems to be talking in a foreign language when describing what is expected of him.  I feel old!

Without further witterings, I introduce blog posts for this week.  The first post from the lovely Angela is not a conventional wish list and it would be lovely if you would join in – please let Angela or me know what you are taking from her list!  Sheryl’s December prompts on A Chronic Voice are listed below – again I look forward to reading your responses.  For those in the UK don’t miss the post for reserving your ticket for the Bloggers Bash in London in the New Year – hope to see you there.

So for now sit down with your cuppa – or maybe you have started on the mulled wine – and enjoy some great blog posts!

http://angelanoelauthor.com/inspiration-motivation/all-i-want-for-christmas-a-wish-list/

http://www.fibrofantastic.com/24-days-fibro-fantastic-christmas/

https://www.jthreenme.com/10-unhealthy-mom-habits-that-must-stop-now/

https://wondermomwannabe.com/show-kindness-women-chronic-illness/

https://adventures-around-the-world.blogspot.co.uk/2017/12/why-friends-are-so-important.html

https://www.achronicvoice.com/2017/12/01/december-prompts/

prompts-17-12-1-886x550

https://www.thepaincompanion.com/blog/pathways-through-pain-remember-to-dream

https://thesickandthedating.com/2017/12/01/the-best-little-gift-guide/

https://brainlesionandme.com/2014/12/23/christmas-analogy-for-spoonies/

https://sachablack.co.uk/2017/12/03/bloggers-bash-tickets-on-sale-now/

https://www.happinessandfood.com/the-world-is-one/

https://foreverymama.org/christmas-shopping-guide-entire-family/

Monday Magic - Inspiring Blogs for You! (1)

Please comment, like and share these posts.  Have a lovely week,

Claire x

 

Monday Magic – Inspiring Blogs for You!

Black Friday has gone…although I suspect it will roll into the pre Christmas sales, my friends in the US have celebrated Thanksgiving and in our household we have celebrated my nephew’s 7th birhtday…and on St Andrew’s Day will celebrate my brothers’s birthday (no age, he might be reading!).  This must mean we are really starting the count down to Christmas!

I have been party to several inspirational moments this week – no, not making the Ghostbusters birthday cake although I think it was pretty good considering the ongoing struggle to keep my shoulder in socket!  The first was a visit to see the film Unrest, made by Jennifer Brea about living with ME/CFS at a local theatre with my mum.  I’m not going to say much about the film here as I will write a review – but Jen introduced us to some really inspiring people across the globe, and then mum and I met some lovely people in the foyer after.  Naturally they assumed that I have ME, and I explained what I do have (EDS, POTS) and how there are many overlaps.  I was delighted to meet one gentleman who was there alone, but has a daughter with a new tentative diagnosis for hypermobility syndrome and possibly POTS.  He took my details, the blog, and information for EDS UK and I really hope that his daughter will get in touch.

As Chair of the KGS Friends, I am often invited to events at my old school and this week Duncan and I attended the senior school production.  We had no idea what to expect and I was slightly nervous when I realised that my wheelchair spot was virtually on the stage – if I had released the brakes I would have taken out a bale of hay and been centre stage.  But we need not have worried about having to applaud politely…..this production of “Nell Gwyn” was fantastic!  We were so impressed by the acting, the singing, costumes – everything!  It equalled a night out to any professional theatre – honestly.  As in every production there were several stand out performances – one from a young man playing the actor who always played the female role (remember this is Charles II time) and he was hilarious.  Comic timing that many pros would envy just oozed from him.  Then there was the young lady playing the lead role, Nell Gwyn.  Isobel Thom was superb!

DPPurkKXcAAR4EQ

Isobel Thom (as tweeted by Izzy)

She never missed a beat with her speech, her singing or the comedy – I do hope that she continues to act when she leaves for higher education next year.  A truly inspiring group of teenagers – we had a wonderful night.

Finally the student engineer asked me yesterday about my nursing at the Middlesex Hospital, London as he had come across some articles about the first HIV unit and a photographer who took intimate pictures in the early 90s.  The photographer is Gideon Mendel and he has published a book called The Ward…..the wards in question being Broderip and Charles Bell.

The-Ward-14

Photograph from collection by Gideon Mendel entitled The Ward

As student nurses working and living at The Middlesex, I believe that we were priviledged to witness some very special times.  They were not easy times and this was probably the first encounter that many of us would have with people our own age dying.  HIV and AIDS was a death sentence then and the majority of the patients were young gay men.  They were misunderstood and villified by certain elements of the press – they were blamed for this disease and feared by the general public.  I remember that there was a huge stigma attached to the unit even amongst other hospital staff in the early days, and haemophiliac HIV positive men did not want to be on the same ward.  Many of the young men had been disowned by family (for being gay) and their support network was from the gay community and the nurses. But I learnt so much about human nature, tolerance and love.  I still remember the first time I saw a Kaposi sarcoma lesion and a young man needing assisted breathing for pneumocystitis pneumonia – both AIDS defining illnesses then.  I believe that for many of us young nurses, we saw no distinction between these young men dying and others dying on the oncology wards.  We “grew up” in our nursing training knowing this terrible disease and the few retroviral drugs available at the time, but this was unusual.  Many of us went on to undertake a specialist course for Care of HIV and Aids once we had qualified (ENB 934 i believe!).  One of my friends also pointed out that it was very unusual for a partner to be allowed on the bed with a patient in those days – no matter sexuality.  The care was enlightened and a patient transfer to the AIDS hospice, The London Lighthouse, really stayed with me into my days as a hospice nurse.  It took years for other areas to catch up – I can still remember the first AIDS patient to be admitted to our hospice in approx 1997 and the ignorance (not intentional) amongst experienced staff.  The young men we cared for and those pictured in The Ward all died, but just several years later advances in pharmaceuticals meant that HIV was no longer a death sentence. As a former nurse and the mother of a young gay man, I am so thankful that times and attitudes have changed and must continue to.

Wow…bit longer than I intended so I will launch straight in and hope that you will indulge my first choice which is a post about Broderip ward.  There is some cookery and stress relief for the holiday season and something called “The Single Woman syndrome” – intriguing. So grab a cuppa and enjoy some new blogs!

https://news.fitzrovia.org.uk/2017/10/15/life-on-middlesex-hospitals-aids-wards-revealed-in-book-and-exhibition/

https://lightscameracrohns.com/2017/11/27/10-tips-for-those-who-dont-have-ibd/

https://www.anchoredinhealth.com/home/2017/11/24/holiday-recipe-series-cranberry-crumble-bars

beckycranberrycrumble

Image from Anchored in Health blog

https://www.mecfsselfhelpguru.com/2017/11/spoonies-saving-the-world-our-value-as-the-canaries-in-the-coal-mine.html

http://chronicallyhopeful.com/shaking-trembling-mecfs//shaking-trembling-mecfs/

https://katiejunesmedley.wordpress.com/2017/11/23/update-blogmas/

https://kedawithani.wordpress.com/2017/11/11/the-single-woman-syndrome/

https://mashaellman.com/2017/11/26/did-you-know-you-have-endless-possibilities/

https://iwillnotliveinvain.wordpress.com/2017/11/26/until-then-bye-dane/

https://lisaorchard.wordpress.com/2017/11/25/looking-for-some-stress-relief-for-the-holidays/

 

Please give these lovely people some feedback – it makes it all worthwhile!  Have a fab week,

 

Claire x

Pin for later

Monday Magic - Inspiring Blogs for You!