Monday Magic – Inspiring Blogs for You!

Monday Magic

I have found myself reading a lot of new blogs and posts recently – many that I have found through link /meet & greet parties and others through connecting on instagram, twitter etc!  It just strikes me what talented people are out there and also some pretty fantastic writers too.  Some of your poetry has blown me away.

So this week I have some very new bloggers to introduce you to along with some well established, but new to me, sites.  I hope that some of you newbies will consider looking up the Chronic Illness Bloggers network and joining us – we are a friendly bunch who communicate mainly on our members facebook page!  Details here : How to join Chronic Illness Bloggers.

So once again, grab a cuppa, put your feet up and enjoy some great posts – please remember to comment and share if you enjoy them,

Claire x

 

http://iwendy.ca/2017/05/17/hello-world/

https://3sistersabroad.wordpress.com/

https://fibrowarroir.wordpress.com/2017/05/11/life-then-life-now/

https://courtneymmorgan.wordpress.com/2017/05/21/week-one/

https://mywalkinthewoods.wordpress.com/

http://www.multipleexperiences.org/2017/05/19/this-is-jamie-the-raw-and-uncut-version/

https://highwaytohealingblog.wordpress.com/2017/05/14/named-remarkable-traveler-by-weigh-out-wander/

https://morespoons.com/chronic-talk-episode-2-mental-health-awareness-month-mother-schizophrenia/

http://www.abreak4mommy.com/2017/04/myobuddy-massager-pro-review/

http://sweatpantsandcoffee.com/sweatpants-self-care-8-tips-to-help-you-thrive-while-living-with-constant-fatigue/

Puerto-Vallarta

Puerto Vallarta – photo taken by Kirstin Larkin, HIGHWAY TO HEALING BLOG

 

 

 

Friday Feelings with Pain Pals Blog

I am really pleased to have been featured on The Zebra Mom regular Friday Feelings feature. Please check it out – and the rest of her great blog! Claire x

The Zebra Mom

Hey there, hi there, ho there!

As it is Ehlers Danlos Syndrome Awareness Month, during the course of May, we will be reading the diary entries of EDS sufferers. Each person experiences their illness differently and I think it will be interesting to see these differences throughout the month.

This week I spoke to Claire from Pain Pals Blog. The mum of two previously worked in health care but medically retired nine years ago. She now works in the education system and enjoys Spoonie friendly hobbies.

Claire was diagnosed with hypermobile EDS at 42. She also suffers from migraines; dysautonomia/POTS, chronic nerve pain, gut problems, Raynauds, neurogenic
bladder and reactive depression. You can find Claire on Twitter, Pinterest and Instagram. 
EDS - Claire pic

“Hi, I’m Claire. I am a married mum of 2 boys aged 21 and 18, and a girl aged 14 living on borders of South London & Surrey, UK. My career was…

View original post 1,195 more words

Monday Magic – Inspiring Blogs for You!

Monday MagicTime for some Monday Magic!  I hope that you have all had a great weekend – I think it was Mothers’ Day in the USA, so hope all you mums were spoilt rotten.  I was asked by Evie, the lovely Zebra Mom, to take a selfie wearing red and to post it to spread the word about Vascular Ehlers Danlos Disease.  We had a very rare moment in our house and I managed to persuade everyone to do a selfie…all 5 of us in one shot!!

vEDS selfie

I am delighted to be still be finding different blogs from the Chronic Illness Bloggers community to introduce here – please remember that just because we are chronically ill doesn’t mean that we don’t blog about other things too!  So sit back with a cuppa and enjoy exploring some great blog reads with me….

https://asmyjointsturn.wordpress.com/2017/05/14/i-preexist-therefore-i-am/

http://brainlessblogger.blogspot.co.uk/2017/05/fibromyalgia-awareness-day-things-i.html

http://moonglotexas.com/2017/05/13/book-review-sweetbriar-cottage-by-denise-hunter/

http://gettingclosertomyself.blogspot.co.uk/2017/05/i-lead-good-life-and-im-not-burning.html?m=1

http://zebrawrites.com/2017/05/06/edsawarenessmonth-blog-challenge/

https://snowflakesandspoons.blogspot.co.uk/2017/05/myasthenia-gravis-and-pregnancy.html

http://www.stopget.org/2017/05/290/

https://findinglifessilversun.wordpress.com/2017/05/08/when-how-dan-became-my-caretaker/

https://veronicalhill18.wordpress.com/2017/05/10/setbacks-and-feeling-broken/

http://stillgotanopinion.blogspot.co.uk/2017/05/the-wolf-and-black-dog.html

EDS-Awareness-Month

Picture from ZebraWrites post

 

 

Monday Magic – Inspiring Blogs for You

Good morning and welcome to another Monday Magic with some more great inspiring blog posts for you.  I have just returned from a GP appointment and my head is spinning with the various specialist appointments I have on the agenda….endocrinology this week, cardiology, rheumatology, hip x ray and then orthopaedics…..

This is without the referrals for the kids!  University College, London where I was diagnosed no longer accept direct referrals so the kids need to be referred by another consultant.  Initially this was to be a paediatrician, but the A level student has turned 18 and the paediatric department decided that they really don’t know enough about EDS to take my lovely girl on, so she has been referred to a paediatric geneticist.  We are going to try to get an appointment for my son with the same rheumatologist that I see…….I think that we just have to go with the saying “don’t hold your breath”!

Monday Magic

So I am going to sit down with a coffee and enjoy some tips, some yoga and some stories from some of my fellow chronic illness bloggers – if you look and listen really hard, you might spot yours truly in the You tube film from Invisible Girl!!

https://1nvisibl3girl.wordpress.com/2017/05/05/living-with-ehlers-danlos-syndrome-edsawarenessmonth/

https://howtogeton.wordpress.com/2017/05/07/how-to-answer-15-tricky-disability-questions/

http://www.satonmybutt.co.uk/more-flare-ups-than-good-days/

https://www.notaballerina.com/2017/05/travel-disability-chronic-illness-episode-53-thoughtful-travel-podcast.html

https://brainlesionandme.com/2017/05/07/self-care-happy-distraction/

http://www.health-hats.com/golden-rule/

https://weartearandcare.com/2017/05/02/meeting-the-neurometrix-team-and-seeing-the-quell-up-close/

http://glasshalffull.online/accessible-yoga-for-all/

http://dystonialiving.blogspot.co.uk/2017/05/my-4-favorite-self-help-tools-for-pain.html

http://www.makeitbakeitfakeit.com/2017/05/my-body-my-prison-my-life-with-mecfs.html

http://upbeatliving.net/downsizing-emotional-work-tips/

http://dadhasaheadache.com/2017/03/22/shattered-dishes/

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Monday Magic – Inspiring Blogs for You

Monday Magic

 

Happy May Day! Can’t quite believe we are already in May – or that the weather here in the south of England has been more like January than late April.  Duncan has been away with year 5 (9-10 year olds) on an activity week and has returned absolutely shattered and full of cold, and the rest of the household is supposed to be revising this bright bank holiday!  Engineering third year exams begin this week, A level English lit course work is due in tomorrow and the youngest has to finish her art portfolio and complete an art exam tomorrow.  The house is a mess!!

So what better way for me…and you…to get away from the stresses of the household than with a cuppa and some more inspiring blog posts from the CIB community.  This week I have included something about EDS awareness, as a zebra myself, and also be sure to check out #ProjChronicWisdom and #May12BlogBomb.  Enjoy!!

eds awareness

http://www.thisspooniespeaks.com/2017/04/eds-awareness-month-blog-challenge.html

http://sallyjustme.blogspot.co.uk/2017/04/may12blogbomb.html

http://chronicallyroyal.blogspot.co.uk/2017/04/what-educational-establishments-need-to.html?m=1

https://imsickandsoareyou.com/2017/05/01/where-nobody-knows-your-name/

http://www.achronicvoice.com/2017/04/29/projchronicwisdom-motivation-tips/

http://www.alihemsley.com/blog/2017/4/27/opening-up-about-mental-health

https://www.ecofluffymama.com/2017/05/medical-professionals-refuse-testing/

http://painlovehope.com/four-months-since-major-back-surgery-now/

https://smilesinthetrials.wordpress.com/2017/04/27/the-spring-standoff-is-over/

http://www.mecfsselfhelpguru.com/2017/04/how-to-be-more-effective-with-your-self-care.html

 

Claire x

 

 

 

 

 

Album Review: The Lonely Cry of Space & Time by Anna Coogan

I have just read this review for an artist that I have never heard of in Hifi Pig magazine.  Not quite in character for me – usually Duncan, Mr Intimate Audio, who would be doing this – but I thought I would have a listen based on the review.  Very, very unique sound – slightly reminiscent of Kate Bush…..anyway I have ordered it for Mr Intimate Audio, so great review James Fleming at Hifi Pig!!

The fight against ignorance is central to The Lonely Cry Of Space And Time. Combining the natural with the political, the scientific with the philosophical, and then soundtracking those themes with stirring, atmospheric electric guitar-strumming and haunting vocals is a deadly concoction.

Anna Coogan’s operatic Kate Bush-esque vocals spread the good word across The Lonely Cry Of Space And Time. A voice of reason in an era that conclusively proves that common sense is neither, Coogan’s words are a subversive and eloquent “fuck y’all.”

Underneath its sweet tones and stunning musicianship is a deep dissatisfaction with the status quo of today. The status quo appearing to be ignorance.

Both musical and cultural; here is a classically-trained opera singer armed to the teeth with an electric guitar, a record’s worth of great songs and sharp lyrical insight into the 21st century. If the top 40 sounded like this, we wouldn’t have Supreme Overlord Donald to worry about.”

Full article can be found here :Anna Coogan: The Lonely Cry of Space & Time

It has some great artwork too!!

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Monday Magic – Inspiring Blogs for You

Monday Magic

Good morning!

Another week, so time for some more great blog posts for you and this week includes a couple of ladies who are new to the Chronic Illness Blogger community.  I have spent this weekend catching up with blogs, finding some new ones through others posting on mine and visiting meet & greets.  I have also been introduced to Stumble Upon, (which my eldest tells me is really old fashioned!) – but apparently is a great way to generate interest and find different blogs – quite proud I actually managed to work out how to add the social media button which has been met with hilarity from the tech savvy generation in this house.

Anyway time to make that cuppa, put your feet up and enjoy some new posts from some of the amazing people over at Chronic Illness Bloggers!

http://www.colormelyme.net/why-lyme-disease-awareness-is-important/

http://www.notstandingstillsdisease.com/2015/09/11-health-care-mistakes-you-dont-know.html

http://themigrainediva.blogspot.co.uk/2017/04/conversations-how-to-speak-about.html

https://www.anchoredinhealth.com/home/2017/4/11/why-being-uncomfortable-is-ok

http://emilylofgren.com/resting-well-chronic-illness/

https://ohdessa.com/2017/04/17/a-week-in-the-life-aka-telling-the-stories-i-usually-dont/

http://caseythecollegeceliac.blogspot.co.uk/2017/03/respect-me-respect-chronic-disease.html

Pills, pills, and more pills!

http://atjax.net/im-still-a-good-mom/

http://www.travelbreatherepeat.com/trying-beach-vacation-ko-lanta/

IMG_3243

Stunning picture from Travel Breathe Repeat Blog

 

Claire x

Monday Magic- Inspiring Blogs for You

Hello!  I hope that everyone is enjoying a fantastic Easter  long weekend.  I am still finding new blogs to share with you from the Chronic Illness Bloggers group and this week we have a mixture from art to crafts to our loved ones.  So go make yourself a cuppa, pull up a seat and enjoy getting to know some more fantastic inspiring people,

Claire x

Monday Magic

  1.  http://thethyroiddamsel.com/autoimmune-diseases/losing-friends-and-alienating-people/
  2. https://chronicallycomposed.wordpress.com/2017/04/14/knitter-natter/
  3. https://illness-to-wellness.com/2017/04/15/what-to-say-when-someone-doesnt-know-what-to-say-in-response-to-your-suffering/
  4. http://superpooped.blogspot.co.uk/2017/04/spoonies-artist-problems.html?m=1
  5. http://mysurvivalcollective.com/thank-you-for-my-chronic-condition
  6. https://www.consciouscrafties.com/dealing-with-a-large-order/
  7. https://thegirlwiththefiveladsandfibro.blogspot.co.uk/
  8. http://mystripylife.blogspot.co.uk/2017/02/9-reasons-school-causes-stress-eds-cmt.html
  9. http://countingmyspoons.com/2017/04/when-your-partner-is-struggling-with-chronic-illness-and-pushing-you-away/
  10. http://fedupwithfatigue.com/april-14-2017-fibromyalgia-news/

 

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Beautiful picture from Ness’s post on The Girl with the Five Lads and Fibro

Can creativity be a realistic distraction in the face of chronic illness? “The Agony & The Ecstasy”

I have another link for you this week which examines how distraction, particularly through the arts, can help to manage symptoms of chronic illness.  This could of course be construed as a sweeping statement and I am certainly not saying that every chronic illness can be tamed by use of artistic means.  I am certain that those of us with chronic illnesses will readily say that our own conditions vary from day to day, some from hour to hour, and that relief and the methods to get that relief are variable.  In other words, conditions are individual and we certainly are.

I have written about British actress Cherylee Houston before.  She is in a long running British soap opera, is a chronic pain sufferer, wheelchair user and is the ambassador for Ehlers Danlos Support UK.  In this BBC Radio 4 programme she sets out to meet other chronic pain sufferers and to learn how the condition impacts upon their lives, their work and how they use creativity to help themselves.  Is pain always a negative experience or can it actually enhance creativity?

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Actress Cherylee Houston on the cobbles of Coronation Street with Lara Bloom, EDS.org

Many of us bloggers use writing as a creative way in which to help our own situation – this may be through connecting with others, supporting others in similar situations and reaching out for support ourselves – but more often than not actually writing about our experiences and feelings is a cathartic experience in itself.

 

 

Nearly everyone will be able to identify with some part of this programme and I hope that you find it inspiring.  Enjoy!

The Agony and The Ecstasy

Further reading : The Pain and Performance Artist Martin O’Brien – an essay

Photos from Google Image search

 

 

 

 

Are you a Chronic Illness Blogger?

Calling all bloggers – do you write about chronic illness?  Have you found the Chronic Illness Bloggers yet?  We are a group of like minded individuals who link up and support each other on our blogs, Facebook pages, Twitter, Pinterest, Instagram….you get the idea.

Our blogs range from posts on individual illnesses – pain, fibromyalgia, EDS, mental health, migraine, Lyme disease, to name but a few – to reviews of products, books etc., coping mechanisms, recipes, blogging tips and living life!  Come and join us.

cibloggersinvite