Monday Magic – Inspiring Blogs for You

Happy Monday PPals!  I am currently sitting here cursing as WordPress decided to wipe my writing of this post and I can’t recover it.  It was finished too!! Aghhhh

Anyway I will attempt to replicate it….the Uk’s Strictly Come Dancing is whirling through the weeks in a series of foxtrots, tangos, quicksteps and more.  This weekend saw the couples entering a whole different level as they performed at the spiritual home of ballroom.  Professionals and celebrities alike are all in awe of the iconic Palace Ballroom, Blackpool which takes centre stage and steals the thunder of the dancers, as it is so breathtaking.

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Image from Google images

This weekend saw the end of the road for an inspirational young man who is a gold winning GB Paralympian and 100m sprinter.  I am of course talking about Jonnie Peacock, the 24 year old athlete who aged 5 years underwent surgery for a below knee amputation, having contracted meningitis.  He is the first contestant with a disability to take part in the main series and there have been questions along the way – Is it fair for Jonnie to perform the same dances as his able bodies counterparts? How can the judges possibly give Jonnie the same level of critique?  Why are the judges picking on Jonnie’s posture, bottom position and stature when he has one leg?

But these questions have never come from Jonnie himself and in his farewll speech last night he said that he was honoured to be the first disabled contestant, and he thanked the judges for judging him as an equal saying

“That’s what I want. You’ve been critical with me and I want that criticism. I think that’s fantastic and hope it paves the way for more people to come through and I think they may be able to stick their bum under a bit better than me.”

His tearful professional partner Oti Mabuse said

“This has been one of the most life changing things that could ever happen to me. Jonnie is not only an inspiration but he represents so much more. ‘If anybody wants to do anything, if you put your mind to it then you can achieve it and that’s what he represents.”

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I am not suggesting that we will all, abled or disabled, reach the heights of this remarkable young man, and for those of us living with chronic illness invariably daily pain and fatigue won’t even allow us to reach the putting our minds to it bit, let alone anything else!!  But this is surely a good mantra to aspire to and Jonnie Peacock has left Strictly a dancer.  Watching him jive on his running blade was a highlight for me…..and not forgetting him as Jack Sparrow on Halloween.

So from one inspiring young man to a handful of inspiring blog posts.  With another weekend of dodgy dislocations, I have read lots of blogs, interspersed with cheesy family movies and heat pads!  I have picked a selection of posts for you from a variety of bloggers – and as yesterday was World Prematurity Day, the first comes with a mascara alert as it is a post from Nicole that is written from the heart.  I have also managed to slip in a Christmas post – never too early – and will aim to do so each week in the build up to the festivities.

So grab a cuppa, sit back and enjoy some fab posts!

https://www.nicolefrancesca.co.uk/homepage/2017/11/19/november-never-forgotton

https://themswire.com/2017/11/19/four-airport-tips-for-disabled-flyers/

https://chronicallystrong.com/lupus-aibd/

https://yadadarcyyada.com/2017/11/17/people-forget-kindness-is-free-2/

http://www.themonochromeblog.com/single-post/2016/09/11/How-to-move-to-a-foreign-country-go-travelling-when-your-a-spoonie-TBC

https://thewildreaderwithacat.wordpress.com/2017/11/18/paint/

http://www.thirstydaddy.com/2017/11/10/the-good-guys-dont-always-win/

https://thedreamgurusite.wordpress.com/2017/11/17/how-i-found-out-about-eds/

https://mydailyjournalonline.com/life-rulebook-guest-post-riya/

https://medicalmysterymusings.wordpress.com/2017/11/19/christmas-expectations/

 

Please like, share and follow these blogs if you enjoy them!

Have a great week,

Claire x

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Monday Magic Nov 20

 

 

 

 

 

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Monday Magic – Inspiring Blogs for You!

This weekend has been one of Remembrance in so many places across the globe.  With Saturday being the 11th November, it was totally fitting that the Lord Mayor’s parade in the City of London started with the playing of the last post and a 2 minute silence.  In true UK style, the weather was miserable – I can’t remember the last time it was fair for the Lord Mayor’s show!!  Sunday however was a beautiful, crisp day as the veterans and current serving forces gathered alongside politicians, members of the public and the royal family for the service at the Cenotaph.  The oldest veteran attending, a 99 year old former Royal Marine Ernie Searling, sent a heartfelt message to the world – “I feel very humble seeing so many hundreds of men and women on the parade today. So very, very humble, particularly those who are not with us on this day today… All I hope is that the future generations could see this parade, see some solidarity in it. See that the betterment of mankind in England, especially Great Britain, should be at its highest level. We don’t want street fights. We don’t want arguments. We don’t want racial injustice. All those things are horrible!” He brought a tear to eyes in our lounge.

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Former Royal Marine Ernie Searling

Over the last week the BBC have been broadcasting a series of programmes celebrating and highlighting the roles women have played in war over the last one hundred years – Women at War 100 Years of Service.  – currently available on the iplayer.  It is difficult not to be inspired by the young women of the World Wars who were trailblazers for so many careers that women had previously not been able to undertake – and I would imagine that this is the case in other parts of the world when the men were on the front line.  Some of these women, now elderly ladies, recounted tales of their training and deployment – as radio operators, munitions workers, pilots and engineers. These women paved the way for both women in the forces and in the workplace generally.

My first inspiring blog for you today follows this theme and gives thanks on Remembrance Day – but the others have a mixture of themes from midlife crisis (me!!) to migraines to books & disability to Christmas baking & gifts!  Not on quite the same par as WW2, but I think that you will enjoy these inspiring posts and urge you to grab a drink, take a seat and enjoy.

https://butterflyinremission.wordpress.com/2017/11/10/with-heartfelt-thanks-on-remembrance-day/

https://www.shailajav.in/shifting-perspective-create-more-than-consume/

http://www.crestingthehill.com.au/2017/11/that-midlife-crisis.html

http://www.youcanalwaysstartnow.com/2015/06/01/success-who-gets-to-define-it/

https://brainlessblogger.net/2017/11/12/symptoms-of-a-migraine-that-can-be-as-severe-as-the-pain/

https://ginlemonade.wordpress.com/2017/11/03/3-books-3-blogs-from-gemma-at-wheelescapades/

http://drallisonbrown.com/power-perspective-shoe-fits-wear/

https://cookandenjoyrecipes.wordpress.com/2017/11/11/ess-gf-christmas-candy-cane-butter-biscuits/

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Image fro The Recipe Hunter

https://chronicrants.com/2017/11/01/defining-affordable/

https://theblogbroadblog.wordpress.com/2017/11/11/great-gifts-ideas-from-uncommon-goods/

As ever please share this post and these posts if you enjoy them!

love Claire x

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Monday Magic - Remembrance

 

 

 

The need for a challenge to help myself and others #BBCRickshawChallenge

Oh my goodness, what have I done?  I think that I experienced a brain storm this week – well an even greater one than usual!

Two years ago I had only recently started this blog and was recovering from spinal cord stimulator surgery when I wrote about some inspiring young people in the UK undertaking The Rickshaw Challenge.  This is a project that has run for several years now and is championed by the BBC One Show – and particularly by presenter Matt Baker – in order to raise money for the UK charity Children in Need, founded by the late Sir Terry Wogan.  A group of young people who will each have a story, from illness to bereavement to overcoming adversity, and have all in some way benefited from the charity, cycle a route across the UK on the rickshaw as a team and fund raise along the route.

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Image from BBC website

The strength of mind and spirit to succeed always shines from these youngsters every year.  I was caught off guard last week by a young lady called Sabah who is a member of this year’s 6 strong team.  She has had multiple health problems, including cancer, a kidney transplant and now is on dialysis – but she told the audience in a most matter of fact way that she would simply do her stint pedaling the rickshaw and then stop for dialysis.  I was a wreck by this point.  But the determination of these young people, and Matt Baker who cycles the whole route with them giving encouragement and support, has really got me thinking.

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Image courtesy of Google search

My own health has deteriorated over the last 2 years, and there is always an issue with chronic illness and the deconditioning of the body.  For us bendy people with Ehlers Danlos Syndrome it is really important to keep moving and as physically strong as possible – most of us will have exercises from physiotherapists and doctors.  But chronic health can become a vicious cycle (no pun intended) as the body becomes deconditioned due to pain, fatigue etc and then the deconditioning reduces the ability to “move” or exercise, in turn leading to further deconditioning.  Add a spot of dysautonomia into the mix – check out what it is here – in my case dizziness, low blood pressure, raised pulse, fainting (POTS) and you have a recipe for an increasing number of sofa days and Netflix!

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Image courtesy of Google search

So what is a middle aged (eek) girl to do in order to keep the mind and body working? Well, blogging and writing and generally being part of this fantastic online community does wonders for the mind alongside being a school governor and now chairing an alumni committee.  The body isn’t so easy, especially on high pain and flare days.  The spinal cord stimulator still helps to mask the leg and back pain from nerve root damage, but then for the EDS pain throw in some pregabalin, naproxen, cocodamol and the odd shot of oxynorm and the result may be manageable.  The changes in weather don’t help and I am still certain that my titanium spine reacts to changes in air pressure!

But as the young Team Rickshaw show us, there is always someone worse off and always someone to inspire and motivate us.  Sometimes it is important to set oneself a challenge in order to move from one day to the next when life is throwing rubbish about.  I am still learning that those challenges need to be smaller these days than a decade ago – pacing….no, I don’t really do that very well.

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Image courtesy of Google search

So back to my first question…what have I done?  Well I have set myself a challenge and signed up for the Virtual Rickshaw challenge…..I will be riding on an exercise bike from the comfort of my living room between now and New Year.  I’m not going to pretend that I will be burning up the miles and covering anywhere near the real rickshaw ride, or that I will even manage to pedal every day.  But if those youngsters can overcome adversity and put themselves out there, then this old bird can surely help herself ….and if I can raise a little money for Children in Need, then all the better!!

If you would like to visit my challenge page please find it here…..no expectation to donate, but it would be lovely to receive some encouragement and support over the next couple of months…maybe you could even share for me.  I will give you updates of my progress…..so with today as day one I managed 3 miles with only a neck vertebra and shoulder dislocated.  Not bad going for me!!  (Don’t worry folks, I am ok – good excuse to avoid the washing up!)  Onward and upwards…

Chronic Pain and the Opioid Epidemic – with thoughts from Chronic Mom, Shelley

Here in the UK we don’t have the issues around a GP agreeing to treat chronic pain or of insurance covering prescription charges in the same way that patients in the USA do.  I am not saying that our GPs always get it right when treating those of us with chronic ailments, and I believe that chronic pain can be treated back to front – that is drugs are thrown at it as a first line and then referrals for specialist pain clinics come too late.  I was one of eleven on an in patient pain course for assessment for spinal cord stimulator implantation two years ago.  We had all lived with chronic pain for years and this was the end of the road…..whilst we appreciated the teaching of coping mechanisms, self help and psychological support, most of us felt that this had come years too late in our treatment “journey”! We were all taking opioids and in order to qualify for a stimulator trial we had to come off or reduce this.  A daunting task!

Opioids

Any one living with chronic pain will have a stash of opioid drugs in the cupboard! A few of mine!!

 

This isn’t necessarily a criticism of our doctors – I know that they have such a limited time to see and get to the bottom of each patient’s problems.  Who saw the BBC documentary series following Dr Rangan ChatterjeeDoctor in the House“?  He had the luxury to be able to spend time with his patients – over a period of weeks he spent time in the home, became familiar with families and habits, diets, sleeping patterns, which all allowed him to dissect issues such as fibromyalgia, cluster headaches, chronic fatigue syndrome and more.  But this is not the real world and in waiting rooms across both sides of the pond, the queue of people needing help for chronic pain grows.

I mentioned prescription costs and in the UK we are fortunate, yes I did say fortunate, to have a fixed price per item and for those of us needing more than one drug per month, the prepayment programme saves money on these charges.  But we are experiencing constant cuts and patients are seeing their regular medication being withdrawn – I recently read a letter from a young father who has had his medication for rheumatoid arthritis stopped due to funding cut backs. However in other parts of the world patients must cover the full cost of drugs if insurance will not pay out – I take Lyrica/pregabalin and prior to the initial licence expiring, each month’s supply cost hundreds of pounds. The first time that I was prescribed it was at the private hospital attached to the hospice where I worked – aged 39 I had to ask my dad to pay as I didn’t have enough money with me to cover the private prescription.  Dad has never let me forget that he put up the funds to start my drug habit!!!  Such a joker….

Without further ado I would like to share with you Shelley’s post in which she discusses the use of opioids – both on prescription and illegally.  It is an informative read, particularly for those in the States.

People with Chronic Pain did Not Cause the Opioid Epidemic

A great deal of people are uncomfortable with how often I address the “opioid epidemic” and how it hurts people with chronic pain. I think this is because healthy people like to imagine that doctors can fix everything and if something isn’t fixed that it must be the person’s fault. Therefore if someone is in pain they aren’t really being denied treatment for it, they just aren’t trying hard enough. Unfortunately the reality for people with chronic pain is very different. It doesn’t matter if you’re the perfect patient, doctors will no longer prescribe pain medicine.

Even if you’re lucky enough to find a doctor who will treat your pain, good luck getting your insurance to cover your prescription or your pharmacy to fill it. These days a pharmacy can refuse to fill your prescription and then call your doctor and tell them they were wrong to give you this medicine. Opioid hysteria has gotten so severe that now we’re bypassing the judgement of doctors and listening to pharmacists instead. My opinion of doctors has never been high, but they go through years of medical school for a reason. While pharmacists are educated they are not doctors and are not familiar with individual patients. So why are we granting pharmacist’s more power than doctors? Oh yeah, everyone on pain medication is an addict.

Here’s the problem though, the opioid epidemic does not come from prescribed pain medicine or chronic pain patients. In fact 75% of all opioid misuse starts with people using medication that wasn’t prescribed for them. Also 90% of addiction starts in the teenage years when teens are also misusing alcohol and hard drugs in addition to pain killers.  Have we banned alcohol yet? Because 88,000 people die of alcohol related deaths per year and no one seems to care. Instead we ban pain killers even though less than one percent of those who were well-screened for drug problems developed new addictions during pain care. In other words, people with chronic pain are not the problem and were likely never the problem…….”

For the full post please visit Shelley at The Chronic Mom

One Liner Wednesday – My Bendy Body

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So……Life with Ehlers Danlos today meant opening the microwave and putting my neck out!!!

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#1linerWeds

From Linda’s One Liner Wednesday – visit her blog to see other participants’ one liners! https://lindaghill.com/2017/11/08/one-liner-wednesday-this-is-your-brain/

 

Nobody said it would be easy – cake, life and curveballs

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Tonight is the 3rd birthday for The Book Club on Facebook – a fantastic group that I belong to full of authors, reviewers and readers.  Basically book people.  Yours truly has been making the birthday cake over the last few days and with a shoulder slipping in and out of socket it has been no easy task!

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Of course I have been too ambitious and I always start with an image of the finished cake, and then am disappointed in my results.  This has taken me longer not just due to my lack of a right arm – yes, I am right handed – but also down to the design and needing to let it harden in phases.  More of that later.  It has made me draw parallels with expectations of everyday life – don’t worry I’m not going to get too deep here.

But how often do we set out with expectations of how an area of life will turn out only to be disappointed.  So many people talk about their life plans from university to careers to marriage to children etc, etc.  But life has this habit of throwing in a few surprises and curve balls along the way doesn’t it? Isn’t this true for everyone?

Life with illness – be it chronic, acute, mental or physical – is something few of us can anticipate and much less embrace.  When I set off to nursing college as an eager 18 year old, I never dreamed that life would turn out like it has.  But then I guess it is a good thing because with each setback it is so important to be able to get back up, brush yourself off and continue.  If I had known when I had major back surgery at 21 that by 38 I would be heading for medical retirement, I might not have tried so hard to get myself back on my feet and back to work.  I loved those years nursing and I think that I was a pretty good nurse.  If I had known my genetic diagnosis – Ehlers Danlos Syndrome – and all that it covers aged in my teens, I might not taken up rowing and then gone on to nursing – probably the worst things I could have done but great experiences.

But then some of the curve balls can be pleasant surprises.  For me probably the biggest surprise was falling pregnant when I had been told I would never conceive naturally.  The tiredness, anaemia and nausea/sickness turned into a pregnancy when my GP carried out a PAP smear and informed my cervix was blue – a classic sign of a 13 week pregnancy apparently!  I was taking HRT and had gone for a check up ahead of a new job – but came out as a mummy.  A huge curve ball, not in the game plan but fantastic (although I wasn’t saying that half an hour ago when said babe, 21 years on, created havoc in the kitchen with a pot of pasta on the stove!).

Being Mum

The surprise. aged 4 weeks….now a cover board on Pinterest!

I suppose what I am getting at is the importance to strive hard but also to accept that not everything will go exactly to plan…..and this is ok.  For me I’ve been thinking about the periods of needing to let my cake set before I can continue with it – living with chronic illness has these periods when fatigue hits and symptoms flare equalling a need to rest and pace.  Wait for the cake to set!  Don’t rush it, don’t take short cuts because there will be some sort of pay back.  In my experience this is life – illness or not.

So back to the cake….it is for a book club, so clever clogs here decided to make a stack of books.  The individual books were made – one chocolate, one Victoria sponge and one lemon – and then the icing covers started.  This is where the patience and waiting was required and I’m not good at this part!  Then last night came the final assembly of the three tier cake to form a stack of books……it wasn’t completely straight forward, there have been a couple of corners broken, some scaffolding was required and this morning some patch were required to plaster a few stress fractures.  The result is a stack of books that are not altogether straight and definitely look like they have been well loved if a little dog eared.  Not so different to life, I’d say – starting with high expectations (nothing wrong with that and I am not saying they should be lowered), hitting a few bumps along the way, the odd curve ball and maybe the finished product not quite as expected, but nevertheless created and to be made the best of.  Not always easy to do or accept, but as the infamous anonymous quote says “Nobody said it would be easy, they just promised it would be worth it..”

Will let you know if this holds for the cake when it is tasted, as for comparisons with life….what do you think?

Nobody said....

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Monday Magic – Inspiring Blogs for You

Welcome back to Pain Pals for what I hope will be a great week following a fantastic weekend! Those of you who have read my previous couple of posts will know that our lovely girl has her German exchange partner staying – an equally lovely young man of 15 and about 6 feet 3!!  We had a house full on the first night as we hosted all the English girls and German boys & girls to help break the ice; and then when hubby arrived home Saturday evening having collected from ice skating & bowling, I couldn’t help thinking “Bloody hell, my new car really is big” as the front door opened and a stream of teens came in.

There were 16 in total – and no it turns out that the car isn’t really a Tardis – but they were followed by a steady stream of takeaway deliveries from 5 outlets.  I can’t remember when, if ever our doorbell has rung so many times on a Saturday night! I just commented on an EDS Facebook group that a huge positive for us this week has been to see our normally angst ridden teen turn into a group organiser and hostess.  We had only been expecting 6 back on Saturday, but in order to avoid some breakdowns within the group our girl sorted them all (and took over our lounge ha, ha, ha) with tact and diplomacy to ensure everyone had a good evening.  Teenage relationships can be so tricky at the best of times, but throw in different languages, exchange partners paired who ordinarily wouldn’t be in the same friendship groups, one all girls school & one mixed sex, and the probability for issues is huge!  It has been interesting to see that the mixed sex pairings – like our lovely girl and lovely German boy – have been less problematic than the all girls – teenage girls and friendships equals another blog post entirely methinks!  The mixed sex group – 4 couples – went to Thorpe Park Fright Night on Friday and had a fantastic time. Not my cup of tea but they loved it.

IMG_3477As for me I am officially exhausted, typing one handed whilst in a sling again, but am officially one very proud mum having watched my girl blossom before my eyes.  Some might say turning into a chip off the old block – and even her eldest brother commented that the social awkwardness she professes to have is just not evident for the rest of us.  Today they have all gone to Brighton – the Pavilion, fish and chips, the beach and the lanes. Whilst the fatigue and dislocation have taken their toll, I have found some more fabulous blog posts for you to enjoy.

 

 

 

 

 

So grab a cuppa, kick you heels up and sit back to read some fab pieces, all very different but all inspiring.  I particularly love the Lush products review from Katie Cupcake and the beautiful piece about friendship from Happiness and Food. Enjoy!

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Photo from Katie Cupcake Life With ME

 

https://fictionisfood.com/2017/10/14/thoughts-on-nannowrimo/#more-4179

https://www.sp-bx.com/rick-and-morty-season-3-review-the-best-season-so-far/

https://clockworkclouds.wordpress.com/2017/10/09/can-you-overthink-an-idea/

http://katiecupcakelifewithme.com/review-with-me/lush-karma-spa-treatment-event-review/

https://www.happinessandfood.com/name-happy/

https://zebratalez.com/2017/10/15/10-social-security-disability-tips/

http://invisiblenotbroken.com/blog/2017/10/4/best-podcasts-to-listen-to-when-stuck-in-bed-with-chronic-pain

http://withoutacrystalball.com/2017/10/12/day-found-family-chronically-ill/

http://www.healthyeatingexperts.com/holistic-therapist-kicked-depression-said-bye-bloat-chronic-digestive-issues-naturally/

https://livingwithme.blog/2017/10/12/all-time-low/

Please comment, share and spread some love for your fellow bloggers.

love Claire x

Monday Magic - Inspiring Blogs for You! (1)

 

 

Tips for Throwing a Party – from Julie at ME/CFS Self Help Guru blog

I might have mentioned in a post earlier this week that it is currently the return visit of our lovely girl’s German exchange partner…or more specifically the return visit of thirteen 15 and 16 year olds.  The British girls, led by our daughter, decided that they didn’t want to revisit the awkward first few days of getting to know you that they had in Germany – they have all kept in touch in the intervening months and wanted to fall straight into “having fun”.  So this meant all being together on their first night….but not in a formal setting of a restaurant….”really we just want pizza and music in someone’s house, Mum!”.

Hmmm……no prizes for guessing who hosted 26 youngsters on Wednesday night.  It did prove to be a great ice breaker and they were extremely well behaved (I think there was more noise last week with just 8 girls!). The lack of mess after a delivery of 10 takeaway pizzas, crisps and drinks was unbelievable.  Whilst I had little to do on the evening, the beginning of this week was busy and Thursday morning saw me have an incredible crash and symptom flare.  I am just so hopeless at pacing myself and saying no…..we had 4 staying last night after visiting Thorpe Park and I think there might be 6 tonight…..I think that I should have read this post by Julie a little sooner!!  Great tips here whether you are chronically ill or fighting fit!

13 Top Tips for Throwing a Party When You Have a Chronic Illness

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A couple of weeks ago, I turned 50 and I really wanted to celebrate with a party. I shared the following tips in a Facebook live broadcast on the day. But just in case you didn’t see that or you prefer to take things in, in writing, I thought I’d share them here too, with the added wisdom of a little hindsight and an extra tip!

  1. Remember you’re choosing the consequences!

Sometimes we can choose to do too much, we just have to be willing and prepared to deal with the consequences (and what better excuse than turning 50!) I planned lots of rest before and after the party. Although my parents were coming to stay a couple of days after, they were warned that I might not have done all the clearing up by the time they arrived and that I would probably have to take it easy. I was willing to accept not feeling on top form for a while afterwards and when I felt rough for a few days I didn’t resist or resent it.

  1. Only invite people you really want to spend time with.

I decided I would only invite people that I really enjoyed socialising with.

To read the remainder of Julie’s tips please visit ME/CFS Self Help Guru

#Blog Tour – How I Motivated Myself to Succeed by Shelley Wilson

Dream It, Live It, Become It

Disclaimer: I was fortunate to be given an ARC by the author in exchange for a fair and honest review. All opinions are my own.

Blog Tour Banner for Shelley Wilson HIMMTS

I first met Shelley Wilson through the blogger community online and was soon following her on Twitter and her blog.  We also belong to a great Facebook group of bloggers who support and promote each other.  Now I must be honest and tell you that I haven’t read Shelley’s first book – yet – “How I Changed My Life in a Year”, but I do know that it was the precursor to this book and that she does refer to it throughout as one book describes the other.  So to put it simply we have “How I motivated myself to Succeed” in my challenge of “How I Changed My Life in a Year”.

Normally I would give a self-help book a wide berth, but I was intrigued by the concept of “How I Motivated Myself to Succeed” and wondered how it could apply to me.  My regular readers will know that my life has changed drastically due to health issues, and as a result I have started to write and connect with the chronic illness community.  I wondered if Shelley’s approach to motivation and success could be translated to something positive for those who are facing huge and often negative health issues.Motivation

This book is easy to read.  There are no difficult words, trendy psychobabble phrases or deep psychological discussions to dissect.  It really does do what it says on the tin – that is to describe Shelley’s personal journey to motivate herself to succeed.  I love the fact that she describes, in brutally honest detail, every little factor affecting her setting and then achieving her goals.  She describes how she learns – as a visual learner – and how preparing vision boards helps her to figure out what it is she wants to achieve.  But Shelley is not prescriptive in her approach and suggests that the reader may find other tools more helpful – she recognises that one size does not fit all.

Many of you will already be familiar with the use of acronyms in the workplace to motivate individuals, or within team building exercises or at a strategic planning level.  Shelley incorporates several acronyms – such as SMART (Specific, Measurable, Achievable, Realistic, Timely) FEAR (False Evidence Appearing Real) DAD(Decision Action Determination) – along the way but does so in a very familiar and easy format that explains exactly how they can be used by ordinary people in day to day life.  I think that this is what I like most about Shelley’s book and her style of writing – she explains exactly how she personally set goals, undertook tasks and arranged her life to achieve her goals.  Now these goals may have included a mammoth one of writing a book, but equally she includes writing a meal plan for her family and encouraging her teens to tick of items on the household task list!

Shelley is a single mum who has run a holistic health business, but has also experienced her own major health problems which forced her to close her business.  I felt immediately drawn to this normal woman, living an ordinary life and I can identify with her.  Her descriptions of home and the teens made me laugh out loud – this lady knows how I live. If I can recognise myself and my friends in this writer, then I can definitely identify with her writing and her suggestions.

As someone who has been disabled with health problems, I accept that I am not going to set a goal to storm the workplace and become a tycoon as my body physically will not allow this.  But Shelley’s frank discussion about organisation, self-care and changing habits can be easily utilised by someone like me to both make the best of my situation, and to realise that I can still achieve something and flourish.  I love her section on decluttering – this covers both mind, surroundings (in my case home) and social media.  She writes about decluttering your Facebook & Twitter….it would never have occurred to me.

Whilst Shelley has written parts of this book with the twelve months from her first book in mind, and thus sets challenges across the year, she stresses, and I believe, that it is possible to use some of the tools over a shorter timescale or indeed for the longer term.  We talk about “pacing” in the chronic illness community and being “short on spoons”, and the second half of this book has so many good suggestions to plan and incorporate these needs with the goal to a success beyond our illness/limitations.  This might be writing a blog, visiting a friend or running an on line shop.

So before my review for this Blog Tour turns into a book, my conclusions!  If you are interested in reading a down to earth, personal experience of motivation and goal setting in order to succeed and achieve – then this is the book for you.  Nothing fancy, no psychobabble, pure sensible advice that we ordinary folk can use to flourish.

A fantastic four stars – please read Shelley’s guest post below!

Book review & blog tour

 

Guest Post From the Author, Shelley Wilson (@ShelleyWilson72) #BlogTour

 When my wonderful host, Claire, offered a spot on her blog for my book tour I was delighted. I’m ashamed to say that after writing a series of guest posts (seventeen in total!) my typing fingers are beginning to look like gnarled claws! Before they give out on my completely I wanted to take this opportunity to find just the right excerpt from my new release for Claire’s audience. I hope you like it.

 

Taken from How I Motivated Myself to Succeed:

When I began running my Motivate Me workshops, I used to leave a handout on all the chairs for the attendees to take away with them. It was my interpretation of motivation. I’d like to share this with you in the hope it resonates with what you are planning for yourself.

M = Mindfulness

O = Optimism

T = Trusting in the Process

I = Inner Wisdom

V = Validation

A = Activating Your Dreams

T = Thinking Outside the Box

E = Empowering Yourself

 

M is for being mindful and learning to be in the now. Slowing down and becoming aware of what your mind/body is telling you enables you to discover new opportunities and experiences. Try a five-minute meditation every morning or night.

O is for optimism. Start to look at your life through the eyes of a child, with innocence. See the simple things that can make a profound difference to your day/week/month, such as a smile, holding a door open, or paying someone a compliment. All these acts add to our well of optimism.

T is for trust. I’m not a life coach or a neuroscientist; I’m a single mum who turned her life around when she hit rock bottom. I had to trust that the lessons I’d learned were there for a reason. I believed that the universe could deliver, and more importantly, I began to trust myself that I could survive, make changes, and be the person I wanted to be.

I is for inner wisdom. You have the ability to change bad habits, to find happiness, and to love who you are. Sometimes you may forget that your inner wisdom exists. It’s always there, just beneath the surface, and it’s ready to provide you with the answers you long for. Using oracle cards can be the perfect way to tap into your inner wisdom.

V is for validation. For every issue you face, or problem you think you can’t handle, there are a hundred other women/men who have been through this and have come out at the other end. You can use their wisdom and experiences as a case study. Let those who have walked this path before you be a mentor, or join a support network, or social networking group. These are all ways to validate that you can get through anything. Don’t be afraid to ask for help when you need it. You are not alone.

A is for activating your dreams. These are the action points you take to make things happen. By taking that first step, you begin a chain reaction that pulls your dream towards you and activates those wishes into becoming a reality. Without this stage you become stuck.

T is for thinking outside the box. Learning to change the way you think can have a profound impact on your life. When you are worried about an issue, stop for a moment and put yourself in the shoes of someone you admire, a strong person who never seems to be fazed by anything – what would they do? Come at your problems and fears from an alternative direction.

E is for empowerment. In today’s society, you have the opportunity to sign up to be a part of powerful social communities both online and in real life. A group of friends with similar interests and beliefs can be invaluable. At home, you may be part of a networking group or a slimming club; perhaps you’re a member of the Women’s Institute, a book club, or a regular coffee morning event. All of these groups empower you. Being around like-minded people, meeting new friends, and sharing that positive energy will feed your motivation to succeed, and will grow your desire to be the best you can be.

If we think about our resolutions, goals, or projects as one big jigsaw, then by collecting all the pieces and slotting them together we achieve success.

This was the final spot on my blog tour for How I Motivated Myself to Succeed, available now in paperback and eBook. Huge thanks to Claire, for allowing me to invade her beautiful blog and share the book love. I hope you enjoyed a brief glimpse into my book world.

 

If you would like to read more then take a look at her new release, How I Motivated Myself to Succeed, out now in paperback and eBook, and packed full of information on self-care, freeing yourself from fear, organising your life, and much more.

Amazon UK

Amazon US

Find out more about Shelley on her author blog www.shelleywilsonauthor.com or via her personal development blog http://www.motivatemenow.co.uk.

 

She is also on Twitter,  Facebook and Instagram

 

Author Bio:

SONY DSCShelley is a multi-genre author of non-fiction self-help and young adult fantasy fiction. Her latest release, How I Motivated Myself to Succeed is being dubbed as the sequel-that’s-not-a-sequel to her bestselling book, How I Changed My Life in a Year. She writes a personal development blog (www.motivatemenow.co.uk) as well as an author blog (www.shelleywilsonauthor.com) where she shares book reviews, author interviews, and random musings about writing. Shelley was thrilled to win the Most Inspirational Blogger Award at the Bloggers Bash in 2016, and to scoop second place in the same category in 2017. She is a single mum to three teenagers and a black cat, loves pizza, vampires, and The Walking Dead, and has a slight obsession with list writing.

 

What are Dysautonomia and POTS?

Hannah on Sunshine and Spoons blog has written this post about Dysautonomia and POTS (postural orthostatic tachycardia syndrome).

She recently did a straw poll on a facebook group that we belong to and very few people had any idea what this medical term means.  I knew because I have it…..but had never come across the term in my own medical career.  Some of you will have read how my symptoms have been particularly bad recently, but I am now able to stand upright again!!

Please read the whole piece and share in order to help us spread awareness!

What are Dysautonomia and POTS?

What are Dysautonomia and POTS-

Did you know that October is Dysautonomia Awareness Month?

Let me back that up a little….do you know what dysautonomia is?

If you said no, you’re not alone.  Most people have never even heard of it.  I didn’t know what it was either until I was diagnosed with it.  I have Postural Orthostatic Tachycardia Syndrome or POTS which is one of the autonomic disorders that falls under the umbrella term of dysautonomia.  Other types include Neurocardiogenic Syncope or NCS and Multiple System Atrophy or MSA.

Despite the fact that many people have never heard of dysautonomia, it’s not rare.  It’s estimated that over 70 million people around the world have it in one form or another.  Often, it’s a secondary condition to another disease or disorder such as diabetes, Ehlers Danlos Syndrome, Multiple Sclerosis, Lupus, Celiac Disease, arthritis, and more   The most severe cases can result in death.

What is POTS?
Your autonomic nervous system regulates different functions throughout your body such as your heart, digestion, temperature, blood pressure, etc.  People with an autonomic disorder such as POTS have issues regulating those things.

 

To read the whole post visit Sunshine and Spoons 

You will also find great links to Hannah’s Sunshine and Spoons Shop

POTSWarrior5