Monday Magic – Inspiring Blogs for You

It has been a sun drenched week with temperatures reaching 35 degrees in London – too hot for us POTSIEs!!  I have been absent from the blog and social twitter as the heat has given me some pretty grotty days, but thank goodness for midodrine – this has kept the faints under control.  Up to now I have had to get my midodrine prescribed monthly by my cardiologist and then dispensed by the hospital pharmacy, a hassle for everyone, but this month my GP has been allowed to prescribe. Hurray!!Monday Magic

Something that the weather has played havoc with has been my icing!!  I planned to make a cake for our friends’ Silver wedding anniversary and it was all going well until Wednesday night when I came to ice with fondant.  Who has ever tried to ice a 24 ounce, 12 inch heart shaped cake in 34 degrees humid heat??  Three of us were doing it – I can’t roll it out any more due to dodgy wrists/hands/shoulders! – and if we tried to lift the wretched stuff once, we did it at least five times and each attempt the sheet of icing split.  Eventually the cake went back in the fridge, the fondant into its tub and me in front of the TV with a glass (large) of wine.  Panic not, yours truly was up bright and very early the next morning and icing the cake at 7 am before a rheumatology appointment at 9 am.  Very pleased with the finished product and I even made it to the party on Saturday for a couple of hours (in the wheelchair with a dislocated shoulder in a sling – colour co ordinated with my dress naturally) where the A level student got his sister tipsy on cocktails. Enough said!!

I’m rather later in the day getting some inspiring blog published, so I suggest that it could be time to sit down with a large glass of vino or a cold beer or even a Pimms, and enjoy some great posts & a vlog.  Think I need to take a close look at the sunburn one and I am intrigued by the Spoonie pin up……

https://confessionsofafibromama.wordpress.com/2017/06/26/a-tricky-parenting-secret/

http://hope-health-healing.net/blog/2017/6/19/how-can-i-prevent-sunburn-naturally/

http://chronicallywhole.com/dear-doctors-may-always-use-powers-good/

https://chronicallystrong.com/7-lessons-orange-is-the-new-black-teaches-society-about-mental-illness/

Image Source: http://bit.ly/2sf6PV7

Image Source: http://bit.ly/2sf6PV7 – Orange is the New Black – from Chronically Strong

https://thezebramom.wordpress.com/2017/06/19/autonomic-testing-what-you-need-to-know/

https://theinvisiblef.com/2017/06/20/swim-classes-lessons-confronting-anxiety-self-doubt-whole-shebang/

https://tipsforme.wordpress.com/2017/06/22/spoonie-pinup/

https://thedisableddivablog.com/2017/06/21/my-body-failed-to-meet-my-expectations/

http://livewithcfs.blogspot.co.uk/2017/06/weekly-inspiration-restorative-power-of.html

 

Hope you enjoy these and take time to leave a “like” or comment – and share some great bloggers’ work.

Claire x

 

 

 

Monday Magic – Inspiring Blogs for You

Monday MagicAnother week and here in the UK we are electioned out!  Well at least I am!  Between the student engineer, now home, and the politics student-in-waiting and the younger sister, mealtimes in our house have proven lively and very noisy as political debates have raged.  Forget the House of Commons, just come to our house!

Of course the student-in-waiting has started his A levels this week and I am probably more stressed than he is.  The whole mum thing, where there is nothing that I can do yet I still worry.  We are keeping everything crossed that an EDS migraine doesn’t rear its ugly head on an exam day as he has had so many recently.  The pizotifen mad him feel worse, so he is now taking propanolol to try to stop the migraines before they start, if you get my drift.  He is pretty good at internalizing things though as believe me you would’t know that there were any exams happening!!

I have had more hospital trips and tests this week which I will tell you about in another post, but mum and I made friends with several delightful elderly gents in haematology outpatients, and the nurse became mum’s friend for life when she declared her to look at least 10 years younger than she is.  One thing we zebras can be grateful to Ehlers Danlos for – great skin!!

I have found another 10 great new blog posts for you – a couple from some friends who have featured before, others who will become new favourites with you I hope! There are a couple of great posts here with the summer holidays in mind – playdough and Disneyland, what more could you want??  So grab a cuppa, sit down and enjoy some fantastic reads……

Love-your-body-e1496630172878

Image from ChronicSex.org

http://theseatedview.blogspot.co.uk/2017/06/its-all-in-your-head-fighting-for.html

https://lightscameracrohns.com/2017/06/05/relationships-caretakers-and-crohns-a-candid-interview-with-my-husband/

https://findingmymiracle.com/2017/06/05/bigger-than-my-something/

http://www.prohealth.com/library/showarticle.cfm?libid=30398

http://patienceandpajamas.com/disney-travels-part-one/

http://www.chronicsex.org/2017/06/7-ways-feel-sexy/#main

https://reclaiminghope.blog/2017/06/08/maintaining-mobility-with-fibromyalgia/

https://beinglydia.com/2017/06/11/the-ache-of-triumph/

https://medicalmysterymusings.wordpress.com/2017/06/01/meet-the-admin-team/

http://strengthandsunshine.com/how-to-make-natural-homemade-gluten-free-playdoh/

 

……..please comment, share and make the blogger’s day!

Claire x

Disney

Image from Google

Monday Magic – Inspiring Blogs for You

Monday Magic

The children of the UK have returned to school after half term, which should have been a week of fun and rest (and revision for the older ones!) – sadly it ended with another devastating terrorist attack which has seen more innocent lives destroyed, and yet more fighting for life across our capital’s major hospitals.

As a professional patient, and in a previous life a medical professional, I have been both a patient and worked in some of these hospitals – I was born in south London and lived in central London during my early nursing days.  My most recent in patient stays have been in Guys hospital, situated next to London bridge the site of the attack on Saturday night.  Being able to picture the streets where an atrocity has happened makes it so much more real – I am sure Mancunians will understand this too.  We spent a day in London last week whilst our 18 and 14 year old went to see the Harry Potter show.  Security was tight at the theatre, as you would expect, but it was lovely to see so many families out and enjoying a beautiful day on the South Bank – it is easy to say that we won’t allow terrorists to stop our normal life, but to actually make sure that we carry on is not always so easy.

Last night the young American singer, Ariana Grande, hosted a benefits concert in Manchester, watched by approx 14 million on the television.  I knew very little about this young lady, but I take my hat off to her for what she and her management team have achieved in the last week.  She was criticised in some parts of the press for “running away”, and then for arranging a benefit too quickly – I think that whatever she did she would be damned by someone.  But having been in an awful situation along with her fans, she used her fame and contacts to do something good…..there were lots of tears in Old Trafford last night, but lots of laughter, fun and inspiration too.

Speaking of inspiration, I am still finding fantastic different blogs from the Chronic Illness Bloggers community to share with you.  If you have followed this regular feature, you know the drill….make yourself a cuppa, settle down and enjoy some great posts from some inspirational people!

https://itpainsmeblog.wordpress.com/2017/05/21/using-distraction-to-heal/

https://medicallyodd.com/blogbreathemia/

https://primaryimmunepatientsunited.com/orphans-of-the-ahca/

https://charlottedebs.com/2017/06/02/footwear-friday-week-1/

http://www.nataliemabbott.com/choose-kind-kinda/

https://treasuresonthesand.com/2017/05/29/stress-a-chronic-pain-warriors-worst-enemy/

https://arkaysthoughts.com/2017/05/23/different-weird-alien/

http://oneticktobesick.blogspot.co.uk/2017/05/lyme-disease-awareness-month-check.html

http://www.whentaniatalks.com/browhaus-classic-brow-lead-review/

http://www.chronicandblessed.com/ditching-sugar/

Enjoy and please like or comment on the posts!

Claire x

 

Monday Magic – Inspiring Blogs for You

Monday MagicWe are all here in the UK, after a very difficult week, enjoying another bank holiday Monday.  I don’t want to write anything other than our thoughts and love are with everyone in Manchester.

This week the youngest household zebra has been away on a German exchange trip and has had the most fantastic time.  I must give so much credit and thanks to the staff and her host families – particularly for quietly acknowledging that her joint and pain problems might impact upon some of the visits.  I think that the visit to caves involved a serious number of steps!!  She has returned on a high, despite having her bag & mobile phone stolen, and the whole group of English and German teens are still chatting constantly on a group chat (you can imagine – “how quickly can I get a new sim card, dad??”)…..watch out for the return visits in October.

File_000 (16) - Copy

Today also marks the last Monday in May and so the last in Ehlers Danlos Awareness month.  I am shamelessly going to share posts and sites that are all from people affected in some way by EDS – from Vlogs on Youtube, to an author to beauty blogs.

For a little Monday Magic, make a cuppa, sit back and enjoy!  Please remember to like, share and comment to make someone’s day!

https://www.facebook.com/search/top/?q=lara%20bloom%20eds# – this appeared on Sky News 28/05/17

http://mystripylife.com/2017/05/zebraday-2017/#more-7973

https://ribbonrx.com/2017/05/26/the-unpredictability-of-pots/

http://www.hospitalprincess.com/2017/05/this-is-what-ehlers-danlos-syndrome-is.html

http://www.edsneeds.com/spoonie-press/2017/5/27/mylifeinzebrastripes

http://caitlinswish.com/

https://spooniecentralbeautyandfashion.wordpress.com/about/

http://www.potsuk.org/stories/54

https://www.facebook.com/sherry.selfe.pro?hc_ref=PAGES_TIMELINE#

 

 

 

Monday Magic – Inspiring Blogs for You!

Monday MagicTime for some Monday Magic!  I hope that you have all had a great weekend – I think it was Mothers’ Day in the USA, so hope all you mums were spoilt rotten.  I was asked by Evie, the lovely Zebra Mom, to take a selfie wearing red and to post it to spread the word about Vascular Ehlers Danlos Disease.  We had a very rare moment in our house and I managed to persuade everyone to do a selfie…all 5 of us in one shot!!

vEDS selfie

I am delighted to be still be finding different blogs from the Chronic Illness Bloggers community to introduce here – please remember that just because we are chronically ill doesn’t mean that we don’t blog about other things too!  So sit back with a cuppa and enjoy exploring some great blog reads with me….

https://asmyjointsturn.wordpress.com/2017/05/14/i-preexist-therefore-i-am/

http://brainlessblogger.blogspot.co.uk/2017/05/fibromyalgia-awareness-day-things-i.html

http://moonglotexas.com/2017/05/13/book-review-sweetbriar-cottage-by-denise-hunter/

http://gettingclosertomyself.blogspot.co.uk/2017/05/i-lead-good-life-and-im-not-burning.html?m=1

http://zebrawrites.com/2017/05/06/edsawarenessmonth-blog-challenge/

https://snowflakesandspoons.blogspot.co.uk/2017/05/myasthenia-gravis-and-pregnancy.html

http://www.stopget.org/2017/05/290/

https://findinglifessilversun.wordpress.com/2017/05/08/when-how-dan-became-my-caretaker/

https://veronicalhill18.wordpress.com/2017/05/10/setbacks-and-feeling-broken/

http://stillgotanopinion.blogspot.co.uk/2017/05/the-wolf-and-black-dog.html

EDS-Awareness-Month

Picture from ZebraWrites post

 

 

Monday Magic – Inspiring Blogs for You

Monday Magic

Good morning!

Another week, so time for some more great blog posts for you and this week includes a couple of ladies who are new to the Chronic Illness Blogger community.  I have spent this weekend catching up with blogs, finding some new ones through others posting on mine and visiting meet & greets.  I have also been introduced to Stumble Upon, (which my eldest tells me is really old fashioned!) – but apparently is a great way to generate interest and find different blogs – quite proud I actually managed to work out how to add the social media button which has been met with hilarity from the tech savvy generation in this house.

Anyway time to make that cuppa, put your feet up and enjoy some new posts from some of the amazing people over at Chronic Illness Bloggers!

http://www.colormelyme.net/why-lyme-disease-awareness-is-important/

http://www.notstandingstillsdisease.com/2015/09/11-health-care-mistakes-you-dont-know.html

http://themigrainediva.blogspot.co.uk/2017/04/conversations-how-to-speak-about.html

https://www.anchoredinhealth.com/home/2017/4/11/why-being-uncomfortable-is-ok

http://emilylofgren.com/resting-well-chronic-illness/

https://ohdessa.com/2017/04/17/a-week-in-the-life-aka-telling-the-stories-i-usually-dont/

http://caseythecollegeceliac.blogspot.co.uk/2017/03/respect-me-respect-chronic-disease.html

Pills, pills, and more pills!

http://atjax.net/im-still-a-good-mom/

http://www.travelbreatherepeat.com/trying-beach-vacation-ko-lanta/

IMG_3243

Stunning picture from Travel Breathe Repeat Blog

 

Claire x

Thank you – Inspirational Blogger Award

I want to extend a huge thank you to Barbara McLullich, a freelance writer and blogger, who has awarded me a Most Inspiring Blog Award 2016 on her Back Pain Blog Uk….I am thrilled to be in such esteemed company.

inspiring-blog-award

This is what Barbara says about her awards:

Most bloggers, at some point, will have heard of a blog award be it from a professional organisation or from one blogger to another.

After reading on the Word Press Community Pool that ‘anyone’ can make up a blog award and nominate another blogger with that award, I decided I would have a go and make some up of my own.

Receiving any award gives you a bit of a buzz and when I was recently given the “Top Migraine or Chronic Pain Blog Award” I sat and designed my blog widgets and the type of awards I wanted to give out.

All the awards come with rules which the recipient has to follow and although not always the same they are basically

1. This award exists only on the internet, and is given to bloggers by other bloggers.

2. Thank your blogger who gave you the award and link back to their blog.

3. Copy and paste the award on your blog.

4. List 3 things about yourself.

5. Nominate 8 other bloggers for the award and list them.

6. Inform those blogs by leaving a comment on their blog.

With all that in mind my two ‘new’ blog awards are for ‘My Favourite Blog’ award, and the ‘Most Inspiring Blog’ award.

Sooooo check out your comments my blogging friends as some of you may have a surprise coming your way.”

So following the above, 3 things about me

  • I’m a mum to 3 – now adolescents who turn 21, 18 & 15 this year
  • I’m passionate about health care (the nurse in me) and education
  • I love being active in the chronic illness community – I have found so much support, info and new friends through blogging, facebook & twitter
  • Lucy says I need to put a fourth – I make cakes for friends & family! Becoming harder as my hands and wrists hurt more, but this is this week’s offering!file_000-7

My Inspiring Blog Award was such a fantastic surprise …and now I’m off to decide on some more bloggers to nominate.

Claire