My Guest Post on “You are Awesome” Love Letter – Do You Remember?

Last week I was thrilled to be featured on Angela Noel’s blog “You are Awesome – Celebrating Inspiring People and Interesting Ideas” as her regular Love Letter guest post.

This is actually a poem that I wrote over 14 years ago for one of my closest friends, who had just died after a 2 year battle with breast cancer.  We found ourselves in a situation that I could never have envisaged as our close friendship became one of nurse and patient.  I was recognising signs and symptoms before they were diagnosed, and I encouraged her to accept a referral to my place of work for palliative care.  The day that I called my consultant to arrange for her to be admitted and then called her hubby to tell him, I went home and sobbed.

The next day I donned my blue dress and I went to work to care for my patients and my friend.  I was the nurse in charge and had to be professional, but after handing over to the night shift I couldn’t stop myself from begging the night girls to take good care of her.  She came home the next day, a Saturday, and died at home the early hours of Tuesday morning.  She was 37 and had the most beautiful smile in the world.

Please visit Angela’s post to read my full poem:

Love Letter : Do You Remember?

and have a look around the blog as Angela is one of the most inspirational and beautiful writers that I follow.  Thank you Angela for having me!



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Monday Magic – Inspiring Blogs for You! #Valentine’sDay

Love is in the air…..well it is Valentine’s Day this week anyway, and I hope that love is in the air for you, whether it be romantic or otherwise.  February 14th has never been a huge deal in our house – I don’t think Dad has ever sent Mum a card let alone flowers.  I have had flowers and cards over the years…and the occasional meal out – but I think after a particularly memorable night, crammed between 2 other couples in a Chinese restaurant and listening to their conversations as we couldn’t hear each other, the consensus was better to stay at home. OLYMPUS DIGITAL CAMERA We might have passed this on to our kids having just mentioned it to one son, who looked at me as if I was mad even mentioning doing something to mark the day.  Funny thing is we are going out this year – hubby is taking me to a live RSC streaming of Twelfth Night….might even get a McDonalds out of it if I play my cards right (are they gluten free I wonder?!).

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Monday Magic - Inspiring Blogs for You!Valentines (1)

So fingers crossed the current flare of POTS symptoms have passed by Wednesday otherwise he will be taking his daughter or mother in law!!  Talking of POTS – that is postural orthostatic tachycardia syndrome, not the cooking variety – I saw the online community working at its best over the weekend.  A member of a POTS group put up a very distressed post that signalled an intentional overdose of drugs was being taken – the members of the group went into overdrive to find out where this person lived in the world, making contact with personal friends to check on them, calling on Facebook to help via the reporting suicidal thoughts, and sending message after message of support and hope.  I am so pleased to report that a message was posted last night saying that a stranger had called an ambulance, and the POTSIE was safely in hospital being assessed and truly appreciating all the good wishes.  No trolls, no nasty comments – social media at its best!nope

Yours truly has been sitting watching the winter Olympics and gasping out loud.  The wind!! How are those snowboarders doing it?  I have found the ice dancing particularly inspiring – it took me back to being about 8 and reading the Noel Streatfield novel White Boots.  That book changed my life and I was going to be an ice skater!!  Dad took me to Streatham ice rink in south London, I put one foot on the ice expecting to glide away – and, you guessed it, my derriere met with a very cold, wet landing.  Bang went that dream.  But some of those Olympians are inspirational – the young Russian girls literally float over the ice with such ethereal beauty, and the Canadian pair are just something else.  A human body really shouldn’t be able to do that!! (My bendy  friends will recognise this sentence!).

From inspirational athletes to inspirational blog posts!  This week I have added in some posts for Valentine’s – they are alternating with the normal mix of fab posts from some old  pals and some new friends – some spoonies, others not!  So sit back and relax with some great Monday Magic blog posts!

Really share the love this week and share these posts, comment and make a blogger’s day!

Have a lovely week,

Claire x



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The Blessed Project

Flicking through the blog posts on the blog share threads last weekend (Big Up Your Blog), one from Susie Lindau’s Wild Ride leapt off the page at me.  She has invited bloggers to join her in a very special, positive experience – The Blessed Project.

Susie says “Last year, I posted a list of blessings and included a few photos. The exercise took me to a place in my heart filled with love, gratitude, happiness, and sparkly things. My favorite! For the time it took to create the list, it banished bad news, headlines, and normal everyday frustrations like surfing to buy the perfect gift which is as slippery as Elf on a Shelf.”  What could possible be better at this time of the year than to focus on blessings…and some photos to embarrass your kids??

So where shall I start?

My family naturally…..hubby Duncan puts up with a lot, particularly on those flare days when I am horrible to be around, but he is always there.  He spends half his life running me to different hospitals across London and never (well almost never) complains and is always there to pick up the pieces – or just to pick me up!!

The kids… is challenging having the student engineer living back at home after 3 years away and my kitchen is living proof, but he is getting better at catching me before I pass out.  The middle one – do all middle children play on the old adage that middle borns have such a tough time? – is due home from uni next weekend and it will be lovely to see him (I think – dirty washing???).  We haven’t heard much from him, but presume that is a good thing – although he does send regular pics to his sister.  Finally my baby – my lovely girl.  She drives me mad with her untidiness, but she looks after me over and above what a teen should have to do for her mum – and constantly plays down the fact that she also has the same condition.

My parents – they live up the road and without them our lives would be so much harder on so many levels. Thank you, Mum & Dad!

Photo 28-06-2016, 12 15 43

Their first and only selfie!

My wheelchair – yes really!  It has given me a new lease of life as my mobility has decreased and pain has increased.  I have spent the last few years struggling to maintain some independence and to walk.  But the back pain initially and then the disabling effects of 2 back fusions (they really did add to my problems) and more hip dislocations have led to first funky walking sticks, then Smart crutches and now my wheels.  Not what I wanted during my 40s, but I can go out and join in! My eldest plans on taking me ice skating in it but I didn’t like the wicked glint in his eye when he suggested it!!

Friends who don’t give up on me when I blow them out, who stick by me and let me feel like the woman I used to be.  I also am very blessed to have a whole virtual friends family – bloggers and the chronic illness community who give such support and friendship…and “get it”!  Meeting with online Book Club friends at our annual birthday party was a treat.

I feel blessed to have found some kindred spirits this year at our EDS UK support group.

My furry friends – we have been blessed with some extra time with our elderly mutt, Sam, due to an understanding vet and painkillers (yes, for the dog!); but also our surrogate dogs, Chester who I love like my own, and Prince – both come round every week for walks with hubby and cuddles with me!



30 years on – meeting up with old school friends and feeling the years just slip away.  Hopefully staying in touch….have already met up with one and his family.Class of 87 pic

Finally….staying with the old school theme, I feel very blessed as the Chair of our alumni committee to have been invited to some wonderful events (Henley, the school drama) including the beautiful Carol Service last night in the parish church.  Talking to some of the parents and staff after, over mulled wine and mince pies, we all said that whether we were religious or not, it was a lovely way to start Christmas proper – putting aside the commercialism for just a short time and enjoying some true Christmas spirit.  There just might be a bit more of this spirit at the pub next week when I go to the One Term On event, for the youngsters returning after their first term at university…..won’t be staying too long as this old bird might really cramp their style!!!


Why don’t you link up your blessings with Susie?

Join the Blessed Project and Get Featured!

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The Blessed Project