Book Review Eva Jordan’s new novel “All the Colours in Between”

I was fortunate to be given an ARC via The Book Club on Facebook in return for a fair and honest review. All opinions expressed are my own.

 Brilliant blog posts on HonestMum.com

I must be honest with you.  When I asked to review this book by author Eva Jordan I had not read the first book in the series, “183 Times A Year”, so my first stop was to do just that.  I read the books back to back so it is possible I may muddle some events, BUT the first thing that I would recommend is that you do read the first novel before embarking on “All the Colours In Between” for both maximum background and enjoyment.  I will try my best not to give any spoilers for the second book!

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The modern blended, extended family.  Marriage, divorce, teenagers, love, deceit, 3 generations, ex partners, friends, illness, flying the nest – this list is the tip of the iceberg of the life topics to be found in “All the Colours In Between”.  Lizzie is the mum, step mum, lover, daughter, ex-wife, friend and mentor driving the story of her family and the individual members life journeys.  She lives with her daughter, step daughter and son – all young adults by this book – and her partner Simon.  Her parents play a huge role in the family, along with her brother and his family and not forgetting the rollercoaster that is best friend Ruby.  The relationship with her ex, the father of Cassie and Connor, is strained at best.  But at this point Lizzie has become an author against all the odds – selling real books and featuring in the best sellers list – whilst in the first book she dreamed of this whilst working with books as a librarian.images (2)

In this book Lizzie’s daughters Cassie and Maisie have grown up, ditched their teen disguises, spread their wings and left home. Her son Connor has evolved from a lovely pre-teen into a grunting, hoody wearing, sullen sixteen year old.  I normally write a bit more about the plot in my reviews, but I really don’t want to give too much away.  Reading both of Eva Jordan’s novels gave me the same feeling that I had when I first saw the BBC comedy Outnumbered.  I was certain that someone had planted cameras in my household!  Of course as mum I identify with Lizzie – so much.  When she describes her conversations with her children and her own parents, I was shouting “Yes!”  The feelings of exasperation trying to get through to a teenage boy who looks like a man, is the size of a man, sounds like a man, and thinks he is a man yet is really a man boy – these could have been penned by yours truly!  The descriptions of her forays onto Social Media mirrored my own – my young adult kids shake their heads and ask themselves why they introduced me to it!

But Ms Jordan shakes up the commentary by writing different chapters with the voices of different family members.  In the first book she writes as Lizzie and Cassie for the majority of the time, and in this book Connor features to a greater extent too.  The Cassie of “All the Colours In Between” is older, slightly wiser, but still hilarious in her ability to use completely the wrong phrase or to misunderstand a saying.  Whilst her story is extremely dark in places, her love for her family shines through from start to finish.  Her description of a particularly stressful car journey with Maisy toward the end of the book is just hilarious – no spoilers, so no more!  Connor is that teen who feels misunderstood by all adults, is just experiencing sexual attractions, the pull of alcohol, spliffs and parties, yet is still damaged from the rejection by his father as a young child.  Maisy has moved across the world as true love struck, but when life took an unexpected turn (including a meeting with biological mum) it is her family who she returns to.Book Review - All the Colours In Between

I really could write an essay about this book, but needless to say I LOVED IT!  There is no sugar coating life here – relationships fail, family life is hard work to maintain, good things happen and shit happens.  Eva Jordan gives us it all in a way that had me laughing out loud one minute – particularly with Salocin, the grandfather – and then crying the next.  But no matter what life throws at them, this family will continue to grow and love each other….with some hiccoughs along the way. I cannot wait for the next instalment…..please, Eva Jordan!

Five golden stars from me.

 

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Monday Magic – Inspiring Blogs for You

Welcome back to Pain Pals for what I hope will be a great week following a fantastic weekend! Those of you who have read my previous couple of posts will know that our lovely girl has her German exchange partner staying – an equally lovely young man of 15 and about 6 feet 3!!  We had a house full on the first night as we hosted all the English girls and German boys & girls to help break the ice; and then when hubby arrived home Saturday evening having collected from ice skating & bowling, I couldn’t help thinking “Bloody hell, my new car really is big” as the front door opened and a stream of teens came in.

There were 16 in total – and no it turns out that the car isn’t really a Tardis – but they were followed by a steady stream of takeaway deliveries from 5 outlets.  I can’t remember when, if ever our doorbell has rung so many times on a Saturday night! I just commented on an EDS Facebook group that a huge positive for us this week has been to see our normally angst ridden teen turn into a group organiser and hostess.  We had only been expecting 6 back on Saturday, but in order to avoid some breakdowns within the group our girl sorted them all (and took over our lounge ha, ha, ha) with tact and diplomacy to ensure everyone had a good evening.  Teenage relationships can be so tricky at the best of times, but throw in different languages, exchange partners paired who ordinarily wouldn’t be in the same friendship groups, one all girls school & one mixed sex, and the probability for issues is huge!  It has been interesting to see that the mixed sex pairings – like our lovely girl and lovely German boy – have been less problematic than the all girls – teenage girls and friendships equals another blog post entirely methinks!  The mixed sex group – 4 couples – went to Thorpe Park Fright Night on Friday and had a fantastic time. Not my cup of tea but they loved it.

IMG_3477As for me I am officially exhausted, typing one handed whilst in a sling again, but am officially one very proud mum having watched my girl blossom before my eyes.  Some might say turning into a chip off the old block – and even her eldest brother commented that the social awkwardness she professes to have is just not evident for the rest of us.  Today they have all gone to Brighton – the Pavilion, fish and chips, the beach and the lanes. Whilst the fatigue and dislocation have taken their toll, I have found some more fabulous blog posts for you to enjoy.

 

 

 

 

 

So grab a cuppa, kick you heels up and sit back to read some fab pieces, all very different but all inspiring.  I particularly love the Lush products review from Katie Cupcake and the beautiful piece about friendship from Happiness and Food. Enjoy!

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Photo from Katie Cupcake Life With ME

 

https://fictionisfood.com/2017/10/14/thoughts-on-nannowrimo/#more-4179

https://www.sp-bx.com/rick-and-morty-season-3-review-the-best-season-so-far/

https://clockworkclouds.wordpress.com/2017/10/09/can-you-overthink-an-idea/

http://katiecupcakelifewithme.com/review-with-me/lush-karma-spa-treatment-event-review/

https://www.happinessandfood.com/name-happy/

https://zebratalez.com/2017/10/15/10-social-security-disability-tips/

http://invisiblenotbroken.com/blog/2017/10/4/best-podcasts-to-listen-to-when-stuck-in-bed-with-chronic-pain

http://withoutacrystalball.com/2017/10/12/day-found-family-chronically-ill/

http://www.healthyeatingexperts.com/holistic-therapist-kicked-depression-said-bye-bloat-chronic-digestive-issues-naturally/

https://livingwithme.blog/2017/10/12/all-time-low/

Please comment, share and spread some love for your fellow bloggers.

love Claire x

Monday Magic - Inspiring Blogs for You! (1)

 

 

Inspiration Link Party: 10/13/17

Inspiration Link Party over on Danny’s blog Dream Big

Dream Big, Dream Often

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In an effort to continue to give back to the blogging community I want to host a weekly Inspiration Link Party.  The rules are simple:

  1. Leave a link to an inspiring post or a link to an inspiring blogger that you enjoy and believe others will enjoy as well (not your own).
  2. Leave a simple note as to how the post or blogger inspired you and why you believe others might find value in reading.
  3.  Try to link to posts that offer up an inspiring story or maybe demonstrate incredible courage.  The idea is to share posts in one place that can become a one-stop-shop for inspiration!
  4. Reblog this post to get as much inspiration spread as possible!

It is easy to complain about what’s going on in the world.  Let us see if we can come together and shine our light on others!

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Tips for Throwing a Party – from Julie at ME/CFS Self Help Guru blog

I might have mentioned in a post earlier this week that it is currently the return visit of our lovely girl’s German exchange partner…or more specifically the return visit of thirteen 15 and 16 year olds.  The British girls, led by our daughter, decided that they didn’t want to revisit the awkward first few days of getting to know you that they had in Germany – they have all kept in touch in the intervening months and wanted to fall straight into “having fun”.  So this meant all being together on their first night….but not in a formal setting of a restaurant….”really we just want pizza and music in someone’s house, Mum!”.

Hmmm……no prizes for guessing who hosted 26 youngsters on Wednesday night.  It did prove to be a great ice breaker and they were extremely well behaved (I think there was more noise last week with just 8 girls!). The lack of mess after a delivery of 10 takeaway pizzas, crisps and drinks was unbelievable.  Whilst I had little to do on the evening, the beginning of this week was busy and Thursday morning saw me have an incredible crash and symptom flare.  I am just so hopeless at pacing myself and saying no…..we had 4 staying last night after visiting Thorpe Park and I think there might be 6 tonight…..I think that I should have read this post by Julie a little sooner!!  Great tips here whether you are chronically ill or fighting fit!

13 Top Tips for Throwing a Party When You Have a Chronic Illness

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A couple of weeks ago, I turned 50 and I really wanted to celebrate with a party. I shared the following tips in a Facebook live broadcast on the day. But just in case you didn’t see that or you prefer to take things in, in writing, I thought I’d share them here too, with the added wisdom of a little hindsight and an extra tip!

  1. Remember you’re choosing the consequences!

Sometimes we can choose to do too much, we just have to be willing and prepared to deal with the consequences (and what better excuse than turning 50!) I planned lots of rest before and after the party. Although my parents were coming to stay a couple of days after, they were warned that I might not have done all the clearing up by the time they arrived and that I would probably have to take it easy. I was willing to accept not feeling on top form for a while afterwards and when I felt rough for a few days I didn’t resist or resent it.

  1. Only invite people you really want to spend time with.

I decided I would only invite people that I really enjoyed socialising with.

To read the remainder of Julie’s tips please visit ME/CFS Self Help Guru

World Arthritis Day – 2017

A Scottish Journey with Chronic pain

Today, 12th October 2017, is World Arthritis Day.

WAD

At some point in our lives, we will all be affected by Arthritis.  Whether that’s personally or someone you know, perhaps a loved one, we will all be affected at some stage.

With over 10 million adults living with Arthritis in the UK alone, that’s too big a number for this condition to be misunderstood and misdiagnosed.

“ARTHRITIS IMPACTS THE LIVES OF OVER 10 MILLION ADULTS IN THE UK”

But what do you know about Arthritis?  Is it a condition you know anything about?  Perhaps you have heard of it, but never really gave it a second thought?

So with this in mind, I thought I would share some information on Arthritis, perhaps this may help to give you a better understanding of the debilitating condition that so many people suffer with.

What is Arthritis?

Arthritis describes a range of different conditions…

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Monday Magic – Inspiring Blogs for You!

Hello friends!  Welcome to another week on Pain Pals Blog.

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It has been a busy week in our house with wedding anniversary celebrations, my last governance meeting at our local primary school, a quiz night and all the usual comings and goings.  To say that I am feeling low on spoons would be an understatement, but I never have been very good at pacing myself or saying no!  However our lounge currently resembles a florist shop having been bought some beautiful flowers – 2 bouquets contain lilies which are just opening and are simply stunning. The downside is the pollen getting up noses and on clothes.

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We are currently living in a state of mixed emotions as we await the arrival of the lovely girl’s German exchange partner later this week.  On the one hand she is very excited to see the whole group again and the next minute she is completely stressEau de teened as to how they will all get on, will they have a good time…So – this is another fab example of me not being able to say no! – we are hosting the first evening that the German students arrive, that is 26 teens (half British, half German) in our lounge becoming reacquainted over music and pizza.  Our girl and her best friend happened to be paired with 2 young men who are also best friends – very handy! They spent most of their time in Germany together and I think that we will have a house full over the weekend as they visit Thorpe Park Fright Night & plan trips to London and Brighton!  I have spent this morning fumigating the politics student’s bedroom so that our guest can use it without catching anything.  Why do the rooms of adolescent males all have the same aroma? Eau – de – teen!!

 

Enough of my ramblings – I shall report back on exchange progress as the week unfolds!  Before I share my pick of inspiring posts for the week, I am going to shamelessly plug my book review that I published yesterday for Shelley Wilson’s book “How I Motivated Myself to Succeed” – please take a look and keep an open mind.  There are some great tips to be found.  But now find yourself a comfy corner and curl up to enjoy a really wide variety of posts this week.

https://marriedcatladysite.wordpress.com/2017/10/05/lets-do-something/

https://croneconfidence.com/2017/10/05/communicate-is-the-word/

https://wellsbaum.blog/2017/10/08/the-chemicals-between-us/

http://angelanoelauthor.com/guest-post/love-letter-memories-of-the-grandadest-of-grandads/

https://moderngypsy.in/2017/10/04/mindful-break-2017/

https://thechangeplace.com.au/product/diy-option-freedom-to-choose-self-paced-coaching-program-special-offer-copy/

http://www.balancedespitethechaos.com/blog/mecfs-exercise

https://findingmymiracle.com/2017/10/05/undiagnosed-chronic-illness-fire/

https://strengthandsunshine.com/gluten-free-vegan-chickpea-nuggets-allergy-free-grain-free/

https://achronicspoonful.wordpress.com/2017/10/07/a-new-neurologist/

Please like, comment and share these posts – support your fellow bloggers!

love Claire x

Monday Magic 2

 

#Blog Tour – How I Motivated Myself to Succeed by Shelley Wilson

Dream It, Live It, Become It

Disclaimer: I was fortunate to be given an ARC by the author in exchange for a fair and honest review. All opinions are my own.

Blog Tour Banner for Shelley Wilson HIMMTS

I first met Shelley Wilson through the blogger community online and was soon following her on Twitter and her blog.  We also belong to a great Facebook group of bloggers who support and promote each other.  Now I must be honest and tell you that I haven’t read Shelley’s first book – yet – “How I Changed My Life in a Year”, but I do know that it was the precursor to this book and that she does refer to it throughout as one book describes the other.  So to put it simply we have “How I motivated myself to Succeed” in my challenge of “How I Changed My Life in a Year”.

Normally I would give a self-help book a wide berth, but I was intrigued by the concept of “How I Motivated Myself to Succeed” and wondered how it could apply to me.  My regular readers will know that my life has changed drastically due to health issues, and as a result I have started to write and connect with the chronic illness community.  I wondered if Shelley’s approach to motivation and success could be translated to something positive for those who are facing huge and often negative health issues.Motivation

This book is easy to read.  There are no difficult words, trendy psychobabble phrases or deep psychological discussions to dissect.  It really does do what it says on the tin – that is to describe Shelley’s personal journey to motivate herself to succeed.  I love the fact that she describes, in brutally honest detail, every little factor affecting her setting and then achieving her goals.  She describes how she learns – as a visual learner – and how preparing vision boards helps her to figure out what it is she wants to achieve.  But Shelley is not prescriptive in her approach and suggests that the reader may find other tools more helpful – she recognises that one size does not fit all.

Many of you will already be familiar with the use of acronyms in the workplace to motivate individuals, or within team building exercises or at a strategic planning level.  Shelley incorporates several acronyms – such as SMART (Specific, Measurable, Achievable, Realistic, Timely) FEAR (False Evidence Appearing Real) DAD(Decision Action Determination) – along the way but does so in a very familiar and easy format that explains exactly how they can be used by ordinary people in day to day life.  I think that this is what I like most about Shelley’s book and her style of writing – she explains exactly how she personally set goals, undertook tasks and arranged her life to achieve her goals.  Now these goals may have included a mammoth one of writing a book, but equally she includes writing a meal plan for her family and encouraging her teens to tick of items on the household task list!

Shelley is a single mum who has run a holistic health business, but has also experienced her own major health problems which forced her to close her business.  I felt immediately drawn to this normal woman, living an ordinary life and I can identify with her.  Her descriptions of home and the teens made me laugh out loud – this lady knows how I live. If I can recognise myself and my friends in this writer, then I can definitely identify with her writing and her suggestions.

As someone who has been disabled with health problems, I accept that I am not going to set a goal to storm the workplace and become a tycoon as my body physically will not allow this.  But Shelley’s frank discussion about organisation, self-care and changing habits can be easily utilised by someone like me to both make the best of my situation, and to realise that I can still achieve something and flourish.  I love her section on decluttering – this covers both mind, surroundings (in my case home) and social media.  She writes about decluttering your Facebook & Twitter….it would never have occurred to me.

Whilst Shelley has written parts of this book with the twelve months from her first book in mind, and thus sets challenges across the year, she stresses, and I believe, that it is possible to use some of the tools over a shorter timescale or indeed for the longer term.  We talk about “pacing” in the chronic illness community and being “short on spoons”, and the second half of this book has so many good suggestions to plan and incorporate these needs with the goal to a success beyond our illness/limitations.  This might be writing a blog, visiting a friend or running an on line shop.

So before my review for this Blog Tour turns into a book, my conclusions!  If you are interested in reading a down to earth, personal experience of motivation and goal setting in order to succeed and achieve – then this is the book for you.  Nothing fancy, no psychobabble, pure sensible advice that we ordinary folk can use to flourish.

A fantastic four stars – please read Shelley’s guest post below!

Book review & blog tour

 

Guest Post From the Author, Shelley Wilson (@ShelleyWilson72) #BlogTour

 When my wonderful host, Claire, offered a spot on her blog for my book tour I was delighted. I’m ashamed to say that after writing a series of guest posts (seventeen in total!) my typing fingers are beginning to look like gnarled claws! Before they give out on my completely I wanted to take this opportunity to find just the right excerpt from my new release for Claire’s audience. I hope you like it.

 

Taken from How I Motivated Myself to Succeed:

When I began running my Motivate Me workshops, I used to leave a handout on all the chairs for the attendees to take away with them. It was my interpretation of motivation. I’d like to share this with you in the hope it resonates with what you are planning for yourself.

M = Mindfulness

O = Optimism

T = Trusting in the Process

I = Inner Wisdom

V = Validation

A = Activating Your Dreams

T = Thinking Outside the Box

E = Empowering Yourself

 

M is for being mindful and learning to be in the now. Slowing down and becoming aware of what your mind/body is telling you enables you to discover new opportunities and experiences. Try a five-minute meditation every morning or night.

O is for optimism. Start to look at your life through the eyes of a child, with innocence. See the simple things that can make a profound difference to your day/week/month, such as a smile, holding a door open, or paying someone a compliment. All these acts add to our well of optimism.

T is for trust. I’m not a life coach or a neuroscientist; I’m a single mum who turned her life around when she hit rock bottom. I had to trust that the lessons I’d learned were there for a reason. I believed that the universe could deliver, and more importantly, I began to trust myself that I could survive, make changes, and be the person I wanted to be.

I is for inner wisdom. You have the ability to change bad habits, to find happiness, and to love who you are. Sometimes you may forget that your inner wisdom exists. It’s always there, just beneath the surface, and it’s ready to provide you with the answers you long for. Using oracle cards can be the perfect way to tap into your inner wisdom.

V is for validation. For every issue you face, or problem you think you can’t handle, there are a hundred other women/men who have been through this and have come out at the other end. You can use their wisdom and experiences as a case study. Let those who have walked this path before you be a mentor, or join a support network, or social networking group. These are all ways to validate that you can get through anything. Don’t be afraid to ask for help when you need it. You are not alone.

A is for activating your dreams. These are the action points you take to make things happen. By taking that first step, you begin a chain reaction that pulls your dream towards you and activates those wishes into becoming a reality. Without this stage you become stuck.

T is for thinking outside the box. Learning to change the way you think can have a profound impact on your life. When you are worried about an issue, stop for a moment and put yourself in the shoes of someone you admire, a strong person who never seems to be fazed by anything – what would they do? Come at your problems and fears from an alternative direction.

E is for empowerment. In today’s society, you have the opportunity to sign up to be a part of powerful social communities both online and in real life. A group of friends with similar interests and beliefs can be invaluable. At home, you may be part of a networking group or a slimming club; perhaps you’re a member of the Women’s Institute, a book club, or a regular coffee morning event. All of these groups empower you. Being around like-minded people, meeting new friends, and sharing that positive energy will feed your motivation to succeed, and will grow your desire to be the best you can be.

If we think about our resolutions, goals, or projects as one big jigsaw, then by collecting all the pieces and slotting them together we achieve success.

This was the final spot on my blog tour for How I Motivated Myself to Succeed, available now in paperback and eBook. Huge thanks to Claire, for allowing me to invade her beautiful blog and share the book love. I hope you enjoyed a brief glimpse into my book world.

 

If you would like to read more then take a look at her new release, How I Motivated Myself to Succeed, out now in paperback and eBook, and packed full of information on self-care, freeing yourself from fear, organising your life, and much more.

Amazon UK

Amazon US

Find out more about Shelley on her author blog www.shelleywilsonauthor.com or via her personal development blog http://www.motivatemenow.co.uk.

 

She is also on Twitter,  Facebook and Instagram

 

Author Bio:

SONY DSCShelley is a multi-genre author of non-fiction self-help and young adult fantasy fiction. Her latest release, How I Motivated Myself to Succeed is being dubbed as the sequel-that’s-not-a-sequel to her bestselling book, How I Changed My Life in a Year. She writes a personal development blog (www.motivatemenow.co.uk) as well as an author blog (www.shelleywilsonauthor.com) where she shares book reviews, author interviews, and random musings about writing. Shelley was thrilled to win the Most Inspirational Blogger Award at the Bloggers Bash in 2016, and to scoop second place in the same category in 2017. She is a single mum to three teenagers and a black cat, loves pizza, vampires, and The Walking Dead, and has a slight obsession with list writing.

 

What are Dysautonomia and POTS?

Hannah on Sunshine and Spoons blog has written this post about Dysautonomia and POTS (postural orthostatic tachycardia syndrome).

She recently did a straw poll on a facebook group that we belong to and very few people had any idea what this medical term means.  I knew because I have it…..but had never come across the term in my own medical career.  Some of you will have read how my symptoms have been particularly bad recently, but I am now able to stand upright again!!

Please read the whole piece and share in order to help us spread awareness!

What are Dysautonomia and POTS?

What are Dysautonomia and POTS-

Did you know that October is Dysautonomia Awareness Month?

Let me back that up a little….do you know what dysautonomia is?

If you said no, you’re not alone.  Most people have never even heard of it.  I didn’t know what it was either until I was diagnosed with it.  I have Postural Orthostatic Tachycardia Syndrome or POTS which is one of the autonomic disorders that falls under the umbrella term of dysautonomia.  Other types include Neurocardiogenic Syncope or NCS and Multiple System Atrophy or MSA.

Despite the fact that many people have never heard of dysautonomia, it’s not rare.  It’s estimated that over 70 million people around the world have it in one form or another.  Often, it’s a secondary condition to another disease or disorder such as diabetes, Ehlers Danlos Syndrome, Multiple Sclerosis, Lupus, Celiac Disease, arthritis, and more   The most severe cases can result in death.

What is POTS?
Your autonomic nervous system regulates different functions throughout your body such as your heart, digestion, temperature, blood pressure, etc.  People with an autonomic disorder such as POTS have issues regulating those things.

 

To read the whole post visit Sunshine and Spoons 

You will also find great links to Hannah’s Sunshine and Spoons Shop

POTSWarrior5

 

Dear Hubby….

Dear Hubby,

I woke up this morning wondering how we got here.  If we had known on this day all those years ago what was in store, I wonder if you..or I…would have turned up at Chelsea Registrar’s office?Scan0023

But we did, and here we are, having weathered the storms, the unexpected, the joys and some dark times.  Back then it was just going to be us and your beloved Lotus 7, having been told that babies were not likely when I was diagnosed with polycystic ovary syndrome aged 20.  The first storm – for you at least – was the realisation, soon after we bought our flat in Fulham, that we couldn’t afford the parking space to go with it! So the first Lotus 7 had to be sold as leaving it on the road – even the posh road to Bishop’s Park and the Palace that we overlooked – was not going to happen.  Scan0025

Of course at this time we had no idea about Ehlers Danlos Syndrome – had never heard of it – we just knew I had a host of problems and had already undergone major back surgery and was very bendy. Life in London was great, wasn’t it?  I don’t think that brand new kitchen was cooked in very often as we dined out down the Kings Road or in Fulham most nights.  But all good things come to an end, and you began craving another sports car(!) so the hunt was on to move out of London.  Soon after the move to our first house came another joy in the shape of a second Lotus 7. But within months came probably our biggest unexpected piece of news….I went to the GP for a once over before starting a new job, feeling generally unwell – and came out 3 months pregnant whilst taking HRT.  Hmmm….that little 2 seater didn’t last long either.

There has been redundancy; more babies – including the tummy bug that didn’t go….oops! your little girl…..3 caesarians & increasing back pain; another house move to the same road as your in laws(!); hideous working hours for us both, including 6 day weeks and night shifts; increasing migraines; more dislocations; IBS; school choices; more back pain and finally on the eve of Obama’s first term in office – the straw that broke this nurse’s back!  Then a career lost – permanently.

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And 2 becomes..5

We are quite a few years on and many more major surgeries to add to the list.  Not forgetting the Ehlers Danlos Syndrome diagnosis – for me and the kids.  A life threatening illness for one of our parents and then your own health taking the full brunt of all our traumas. That was a scary time for us all to watch you disintegrate.

But…..we are here still standing – you at least! Me – I spend more time on the ground these days (laugh everyone!).  The kids had to grow up fast and have all turned out to be pretty bright (not sure where that came from), independent & resourceful – so long as we’re not talking about tidiness and cleaning!!  We have had to accept that I need you to officially be my “carer” – which I still hate – as my health declines, and this has been hard for us both having worked and earned from the age of 18.

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Look what arrived today!

But…..with a bit of juggling, fantastic parents and wonderful friends we are doing ok, aren’t we?  No we haven’t any money for holidays, and we worry about being unable to help the kids out financially, but this has led to our young adults working and earning – be it paper rounds, babysitting or writing websites! We are spending more time together as a family, you are enjoying setting up your own small venture and taking on a role at the kids’ old primary school, which has been the making of you. Who would have thought it a couple of years ago!  You never – or rarely – complain about me and I do know that on those really bad days, when the pain flares and I can’t settle, or the black dog (not Sam!) surfaces I can be awful to live with.  Plus there are the endless trips to hospitals across London and the different specialists to keep track of.

Neither of us signed up for this, but then you never know what is round the corner. In a funny sort of way maybe life is actually more fulfilling now.  We certainly both have almost encyclopaedic knowledge of Ehlers Danlos Syndrome and all that goes with it!

So back to the beginning…..it was a pretty dreary day and actually raining when we walked out as Mr & Mrs (at least I did prevent you walking me over the road to Stamford Park!) 25 years ago.  But today has been a bright, beautiful autumn day – Happy Silver Wedding Anniversary, hubby!Scan0024

love Claire x

Dear Hubby

Brilliant blog posts on HonestMum.com

Monday Magic – Inspiring Blogs for You!

October is here! Autumn, the nights drawing in, the beautiful colours outside, digging out the winter warmers, Strictly Come Dancing (huge fan here!) and Halloween…..not quite such a big thing here in the UK as for some of my virtual pals across the pond, but it is growing!  It also brings a special anniversary in our house tomorrow….more of that to come!Monday Magic - Inspiring Blogs for You!

If you saw my post yesterday, you will already know that I haven’t been too well this last week as my autonomic nervous system went into melt down…..causing severe dysautonomia with me unable to stand up, fainting, ear pain (anyone else get this?) and severe brain fog.  Unfortunately this coincided with a call from Ofsted for the school where I am a governor for an inspection that we have been expecting and wanting for some time.  Whilst I managed to get to the school the evening before to meet with the head, the chair and my co-vice chair, I became so aware of the effects of brain fog as I couldn’t recall any recent figures or information that may be necessary for the inspection.  Of course stress often exacerbates illness symptoms – whether chronic or otherwise – and as a bit of a worrier/internaliser (typical of EDS anxiety) I struggled more than usual to sleep and then on the morning of the “big day” I was unable to even sit up without snow vision and nausea. Great – just when I needed to use my brain, which was once OK despite what my kids may say, it was full of enormous balls of cotton wool and opiate sized holes.  My colleagues were of course just fine without me…..but once again I am left with that feeling that I have let other people down.  The loss of clarity and independence drives me bananas!9c1efbf4cd9c5c62d212584a665278e1

So once I was able to read a computer screen again – the light can make the visual disturbance so much worse – I have spent some hours over the weekend looking for some more great blog posts for you.  I am mindful that not everyone who follows my ramblings has a chronic illness, so this week I have found a mixture of posts from cookery to a podcast.

I have my coffee in my hand, so I invite you to sit down and join me for a virtual cuppa whilst enjoying reading some fantastic posts.

https://cookandenjoyrecipes.wordpress.com/2017/09/30/caashifas-apple-crumble/

https://blondewritemore.com/2017/10/01/how-to-survive-blogging-with-a-small-following-sundayblogshare-blogs-bloggers/

https://orianasnotes.com/2017/09/28/5-monthly-favorites-september/

https://www.beecontentyoga.com/aqua-yoga-for-arthritis-research/

https://upbeatliving.net/12-tips-chronic-pain-care-despite-changing-laws/

https://makinglol.com/is-blogging-right-for-you/

https://lifeofstones.com/index.php/2017/09/22/how-changing-your-mindset-can-improve-your-life/

https://cityskippergal.com/2017/10/02/klosterman-welcomes-pink-in-october/

https://poisoninlethaldoses.wordpress.com/2017/10/02/follow-your-gut-because-it-doesnt-lie/

https://makeitultrapsychology.wordpress.com/2017/10/01/negative-core-beliefs-podcast/

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Claire x